[pollianna]

Hi all, am still very new here, still a bit shy about posting :blush:

I have experienced hair shedding for over 5 yrs , probably a lot more but can't remember as memory loss is another awful symptom i have. I am due to get my meds at the end of feb when I see Dr d'cruz again. I currently have no eyebrow growth and my crown is almost entirely transparent. I loose a lot of eyelashes when i am in a bad flare too.

Will my hair grow back ? Do the drugs stop the shedding?

 

[Lily]

Hi polliana,

I'm sorry to hear you have had so much hairloss from the disease :hug: It will probably take many months but once your disease is under better control from the Plaquenil then your hair should start to grow back.

I didn't have a great deal of hairloss but a fair amount around my temples for a while there. It is much better now but when I have a flare-up it does thin out again only to regrow when things settle down.

Many here use Nioxin which I believe is quite pricey but they say it does help a lot with the hairloss.

Dr. DeCruz did check your thyroid also didn't he? Or at least I hope someone has. That too can contribute to hairloss, combined with Lupus it would make the loss even more severe.

love
Lily

 

[pollianna]

Hi Lilly, yes he said my thyroid is fine. I had the whole array of symptoms of Hashimotos and fought to get that ruled out. I eventually realised that it had to be Lupus and found a way to get to the lupus unit. I have seen every single specialist the NHS had to offer except the heart chap. Derm couldn't even give me an explanation for the hair loss...They all missed it except Dr D'Cruz. I feel so safe with him after 10yrs in the medical wilderness.

Im pinning a lot of hope on this treatment

 

[lazylegs]

Hi Pollianna,

I understand your panic feeling :hug:

When flaring I tend to have overall hair loss. One time in particular some of the hair broke mid way down. It looked really odd so I got it cut. Taking off some of the length made my hair look much fuller. So far it has grown back each time.

Take care,
Lazylegs

 

[confused1]

Pollianna, I feel your pain. Truly. My hair is falling out in great fistfuls. My house has long silver hair all over. Everyone's clothes are covered with my hair. I feel like a shedding Afghan hound. I am in a bad flare right now. Maybe once you and I get our lupus back under control our hair will grow back. If not, I'm going Sinead O'Connor.

Sunny

 

[pollianna]

lol Sunny, I know I told my daughter I was shaving mine too, she forbade it. it has to be better than a really bad combover :lol:

My bedroom carpet once caramel is often black, scary when you shed so badly!!

 

[lazylegs]

Hi Pollianna,

One of my friends going through chemo found a really nice wig. Personally I think it is much nicer than her own hair. It is cut in a very modern style. You might trying looking into getting one for any nicer occasions you attend.

Take care,
Lazylegs