Here I am again!
Just come home from another rheumy appointment and still no further forward.
I'm sure your all aware of my story but just need to let some steam off. After appointment with GP on Monday this week and he suggested my fingers were down to vasculitis and that they can't leave me much longer without treatment as my hands have been like this since Feb this year I've got no where today.
I had a stand in Rheumy as regular one was off on something urgent. She seemed thorough but I came away once again feeling low.
She said that my Fibromyalgia is really bad but there also seems other things are going on unrelated. I've heard this now for 8 months. I was under impression after speaking to GP that some meds would be given on this visit but no I just simply have to suffer it seems and at 29 it doesn't seem fair.
Stand in Rheumy ordered more blood tests
U/E
Liver
Random Glucose
CRP
RF
C (something) inhibitor - couldn't read Rheumy writing
Full blood count
Also when Nurse did my weight and blood pressure she said that BP was up slightly but that's probably due to the pain I'm in.
Anyway Rheumy said to stop taking Ami as it's not working and my shakey hand definitely could be a side effect. Although if the shaking doesn't stop it could be due to whatevers happening to me?
So I've now got nothing to treat the pain, Fibro or lesions on fingers.:hehe:
I can't take stronger pain killers than paracetomol due to sensitive tummy. Rheumy suggested that GP could refer me to a dermatologist but as for now she couldn't prescribe anything!
What a complete waste of an appointment. You wait weeks for them to come and then you feel much worse afterwards.
When I got home I phoned my GP who was great. He is now phoning the Rheumy Dept as stand in Rheumy doesn't seem familiar with my case. He said that we are all aware that something other than Fibro is happening and that they should be letting me know. Something interesting he said was that the Rheumy would tell him things different to what they tell me so obviously somethings going on. GP has prescribed Buprenorphine Transdermal patches for the pain but is worried of side effects of sickness. They usually give anti sickness tablets with it but I'm allergic to them. Gosh I feel so complicated.
Thankyou for letting me rant and wish I could be more positive. I hope that I'm not years down the line before diagnosis because things need to improve not only for me but family and work are suffering.
Love Mrs M x
Just come home from another rheumy appointment and still no further forward.
I'm sure your all aware of my story but just need to let some steam off. After appointment with GP on Monday this week and he suggested my fingers were down to vasculitis and that they can't leave me much longer without treatment as my hands have been like this since Feb this year I've got no where today.
I had a stand in Rheumy as regular one was off on something urgent. She seemed thorough but I came away once again feeling low.
She said that my Fibromyalgia is really bad but there also seems other things are going on unrelated. I've heard this now for 8 months. I was under impression after speaking to GP that some meds would be given on this visit but no I just simply have to suffer it seems and at 29 it doesn't seem fair.
Stand in Rheumy ordered more blood tests
U/E
Liver
Random Glucose
CRP
RF
C (something) inhibitor - couldn't read Rheumy writing
Full blood count
Also when Nurse did my weight and blood pressure she said that BP was up slightly but that's probably due to the pain I'm in.
Anyway Rheumy said to stop taking Ami as it's not working and my shakey hand definitely could be a side effect. Although if the shaking doesn't stop it could be due to whatevers happening to me?
So I've now got nothing to treat the pain, Fibro or lesions on fingers.:hehe:
I can't take stronger pain killers than paracetomol due to sensitive tummy. Rheumy suggested that GP could refer me to a dermatologist but as for now she couldn't prescribe anything!
What a complete waste of an appointment. You wait weeks for them to come and then you feel much worse afterwards.
When I got home I phoned my GP who was great. He is now phoning the Rheumy Dept as stand in Rheumy doesn't seem familiar with my case. He said that we are all aware that something other than Fibro is happening and that they should be letting me know. Something interesting he said was that the Rheumy would tell him things different to what they tell me so obviously somethings going on. GP has prescribed Buprenorphine Transdermal patches for the pain but is worried of side effects of sickness. They usually give anti sickness tablets with it but I'm allergic to them. Gosh I feel so complicated.
Thankyou for letting me rant and wish I could be more positive. I hope that I'm not years down the line before diagnosis because things need to improve not only for me but family and work are suffering.
Love Mrs M x