[sushi]

im confused about the hole aps thing. if my anticougulant test came out slightly elevated normal 20 and mine was 27 does that mean that i have aps?
they put me on aggrenox, what is the diffrence between this med and coumadin or warfarin?

my fear is to get a blood clot i dont want this to happen before they tell me that i have aps.

i see my new rhumey next tuesday the 17th. i had to change because my old rhumey doesnt accept my insurance. i realized after a long time that he never tested me for anticougulant or anticardiolipids. can my blood get too thin on this medication? thank you

 

[sam101360]

Hi:

I googled and found the following

Aspirin works by reducing the production of prostaglandins. These are natural substances in the body that help platelets stick together to form blood clots. Dipyridamole works in a different way to prevent clots from forming.

Together in AGGRENOX, these two ingredients are more effective that either one alone. In fact, AGGRENOX is twice as good as aspirin at helping to prevent recurrent TIA/stroke.

Aspirin and generic dipyridamole cannot be used as a substitute for AGGRENOX. When these two medicines are combined in the AGGRENOX capsule, they create a powerful combination treatment that helps prevent clots from forming and causing a stroke.

other than that I cannot offer much on the medication.

If you are concerned, your Dr is the one to speak with.

 

[Maia]

Generally speaking, one would not be diagnosed with APS without testing positive to a clotting antibody *and* having a clotting event. Typically, the clotting event is one of the more severe ones too such as stroke, DVT, pulmonary embolism, etc.

I think that your doctor is following the best steps given your current test result. Many of us will test positive to anti-cardiolipins or lupus anticoagulant and are placed on low dose aspirin only as a preventive measure. A substantial number of us test positive but will *never* have a blood clotting event. I can't remember the statistic offhand right now, but I believe it's actually the majority!

 

[sushi]

i really would not know what to do without this site. you have put my mind at ease thank you so much for your prompt replys, Sam and Maia.

 

[KarolH]

Hi Sushi,

Just checking in to see what the doctor told you at your follow up appt?

I hope you made out ok and Maia is right, there is criteria you must meet in order to be dx with APS. Just having the antibody in our blood does not mean we have APS.

Hopefully you dont have it and never will.

 

[sushi]

hello Karol, and thank you very much for your concern. how are you doing i hope everything has calm down for you. well, i went to see my rhumey and
she ran a couple of tests. they all came back normal except for 1 inflamation marker was slightly elevated.

i asked her if i should keep taking the blood thinner aggrenox and she said to ask the neurologist. when i went to see the neurologist, i told her what my symtoms were and she said that with the mri results and the symtoms that i describe didnt seem to her that i had a tia.

she s running a couple of tests also and in the mean time wants me to remain on the aggrenox. im also getting tested for peripheral neuropathy
and carpel tunnel because of my numbness and tingling.

 

[KarolH]

Well Sushi your better off safe then sorry so to stay on the meds moving forward until they know for sure what is going on may not be such a bad idea.

The bloods that came back normal for you I assume were tests done for APS specifically? Anticardiolipin, B2 Glycoprotein, etc...?

If they all came back normal then that is a good thing. Stay on the blood thinners until your Neuro gives you clearance to stop taking them.

In the meantime hold your head up high and keep us informed.