Hi all,
Sorry to be negative but I feel that I want to scream!!!
I had a positive Lupus antibody result following a thrombophilia screen in March this year, I was then asked to have another blood test in June and was supposed to get the results today, on arriving at the hospital I was informed I had been given the wrong appointment and it was for the wrong department, I now have to wait until Monday, this has all been going on far too long and I need some help aarrggg!!!!!
I am in pain or discomfort all the time, I cant sleep and think I may be developing restless legs, I have joined a gym to try to increase my level of exercise and reduce my ever increasing weight but find it tiring and difficult, I am seeing so many changes in myself both physical and mental that I hardly recognise myself anymore and I miss the old me! I feel soooo low and don't want to keep complaining to my family, I feel like a hypocondriac and a whinge bag!!!!
Has anyone else had to wait this long for a firm diagnosis? is it normal?
I also suffer with an underactive thyroid and between the two things I am so exhausted I could cry, I can't concentrate properly, keep making stupid mistakes and often can hardly string a proper sentence together because I forget the words I need to use, it makes me feel so stupid.
Please tell me I am not on my own, despite having a very loving family and some wonderful friends, they don't understand and I sometimes feel incredibly lonely and isolated.
Sorry to be so down but I can't often be this open and honest about how I feel.
Lill xxxxxx
Sorry to be negative but I feel that I want to scream!!!
I had a positive Lupus antibody result following a thrombophilia screen in March this year, I was then asked to have another blood test in June and was supposed to get the results today, on arriving at the hospital I was informed I had been given the wrong appointment and it was for the wrong department, I now have to wait until Monday, this has all been going on far too long and I need some help aarrggg!!!!!
I am in pain or discomfort all the time, I cant sleep and think I may be developing restless legs, I have joined a gym to try to increase my level of exercise and reduce my ever increasing weight but find it tiring and difficult, I am seeing so many changes in myself both physical and mental that I hardly recognise myself anymore and I miss the old me! I feel soooo low and don't want to keep complaining to my family, I feel like a hypocondriac and a whinge bag!!!!
Has anyone else had to wait this long for a firm diagnosis? is it normal?
I also suffer with an underactive thyroid and between the two things I am so exhausted I could cry, I can't concentrate properly, keep making stupid mistakes and often can hardly string a proper sentence together because I forget the words I need to use, it makes me feel so stupid.
Please tell me I am not on my own, despite having a very loving family and some wonderful friends, they don't understand and I sometimes feel incredibly lonely and isolated.
Sorry to be so down but I can't often be this open and honest about how I feel.
Lill xxxxxx