Hi everyone!
Not been around for a while just tried getting on with things but I just feel sooo terrible at the moment.
I'm no further forward with a diagnosis almost two years on and I am really getting fed up and feel that the rheumy is just not interested now. I had an appointment with the CTD clinic today and came away feeling such a fraud that I'm not well. They have now come to the conclusion that I have fibromyalgia and urticaria. I am not questioning the urticaria as I feel all the symptoms are there and hopefully now they've changed the cetrizine tablets that caused horrendous headaches hopefully these loratidine will work better.:worried:
I really don't feel that I can put my symptoms down to fibro!
Symptoms are: joint pains, headaches, skin rashes, chillblain type rashes on feet and hands, swelling of eyes face and lips, stiff joints, muscle aches, red flushed appearance on cheeks and across nose, stomach pains, nausea, diahorrea, right hand tremors, corned beef type rash on legs, IBS, sinus problems, fatigue and mouth ulcers...
Hope you're keeping up because I'm lost:lol:
Just to say I'm also under a specialist dermatologist clinic since December last year and they've recently done blood tests and a mevalonic acid test on my urine? Any how Rheumy let me know today that the cryoglobulins test came back weak positive but he believes it should have shown negative so now he wants me to have another tomorrow. I feel that they should acknowledge the test instead of for some reason trying to dismiss it. I had this test done a year ago and it was negative.
So now my blood tests that are showing anything are the cryoglobulins, RF above normal range and lymphocytes below range. Can anybody make sense of these as I'm sure they have nothing to do with Fibromyalgia.
Oh yes Rheumy let it slip that Dermy were convinced that I had a connective tissue disorder but he's 100% I haven't. Oh my just to get to the bottom of all this and start feeling better would be great.
What do I do next? Please if anybody has any advice it is more than appreciated.
Thankyou so much for reading.
Mrs M
Not been around for a while just tried getting on with things but I just feel sooo terrible at the moment.
I'm no further forward with a diagnosis almost two years on and I am really getting fed up and feel that the rheumy is just not interested now. I had an appointment with the CTD clinic today and came away feeling such a fraud that I'm not well. They have now come to the conclusion that I have fibromyalgia and urticaria. I am not questioning the urticaria as I feel all the symptoms are there and hopefully now they've changed the cetrizine tablets that caused horrendous headaches hopefully these loratidine will work better.:worried:
I really don't feel that I can put my symptoms down to fibro!
Symptoms are: joint pains, headaches, skin rashes, chillblain type rashes on feet and hands, swelling of eyes face and lips, stiff joints, muscle aches, red flushed appearance on cheeks and across nose, stomach pains, nausea, diahorrea, right hand tremors, corned beef type rash on legs, IBS, sinus problems, fatigue and mouth ulcers...
Hope you're keeping up because I'm lost:lol:
Just to say I'm also under a specialist dermatologist clinic since December last year and they've recently done blood tests and a mevalonic acid test on my urine? Any how Rheumy let me know today that the cryoglobulins test came back weak positive but he believes it should have shown negative so now he wants me to have another tomorrow. I feel that they should acknowledge the test instead of for some reason trying to dismiss it. I had this test done a year ago and it was negative.
So now my blood tests that are showing anything are the cryoglobulins, RF above normal range and lymphocytes below range. Can anybody make sense of these as I'm sure they have nothing to do with Fibromyalgia.
Oh yes Rheumy let it slip that Dermy were convinced that I had a connective tissue disorder but he's 100% I haven't. Oh my just to get to the bottom of all this and start feeling better would be great.
What do I do next? Please if anybody has any advice it is more than appreciated.
Thankyou so much for reading.
Mrs M