I was very impressed with the consultant that I have just seen and I have made a bit of headway with finding out what might be wrong with me. It seems that I have definitely got antiphospholipid antibody syndrome and he thinks that there are many indicators which suggest that I do also have lupus although he cannot say that for sure at this stage. I have had more blood tests done this morning as for some reason the haematology dept failed to do all the tests asked for back in April (helpful!) and he is going to write to me directly with the results.
As I do not have any particular health problems at this moment, apart from anaemia, I'm not due to go back or have any meds prescribed at this juncture. He thinks the flare I had back in April was probably as a response to some infection. If this occurs again then I'm to get back in touch to see him again.
On a more depressing note, he thinks it's very unlikely that I'm going to be able to have another successful pregnancy factoring in the APS, the anti-Ro and my age and other fertility problems. If by some miracle I do manage to get pg again then it will have to be treated as a very high risk pregnancy from the outset. I am finding this hard to deal with at the moment as we had really wanted to have another child - we will have to learn to be content with our wonderful two and try to move on to the next phase of family life.:sad:
So, I still await a confirmed diagnosis of the lupus . . .
Lily
As I do not have any particular health problems at this moment, apart from anaemia, I'm not due to go back or have any meds prescribed at this juncture. He thinks the flare I had back in April was probably as a response to some infection. If this occurs again then I'm to get back in touch to see him again.
On a more depressing note, he thinks it's very unlikely that I'm going to be able to have another successful pregnancy factoring in the APS, the anti-Ro and my age and other fertility problems. If by some miracle I do manage to get pg again then it will have to be treated as a very high risk pregnancy from the outset. I am finding this hard to deal with at the moment as we had really wanted to have another child - we will have to learn to be content with our wonderful two and try to move on to the next phase of family life.:sad:
So, I still await a confirmed diagnosis of the lupus . . .
Lily