[cath]

Hi Karen,

Did he discuss the APS issue with you? I'd be wanting to know what is going on there, as these problems have been a long term issue (since the probable MS diagnosis at least), which predates the lymes by years right?

It is entirely possible to have APS without having lupus, and given your bloods and symptoms should be seriously considered.

Still, it makes sense to have the antibiotics and give your body tome to get over the lymes infection before looking again at what labs and symptoms are saying.

Don't stop searching for answes if you are still having problems8)

All the best,

X C X

 

[cath]

Hi Karen,


Thanks for posting the extra information about the problems you have or have had. From what you write, it seems almost impossible to come to any conclusion other than that you pretty certainly have all 3 - lymes, APS and SLE. Were the discoid lesions or your malar rash ever biopsied?

Obviously you need to kick the lymes before starting steroids or immunosupression, but after that has been achieved, you need to put the hard word on your rheumy to make a firm diagnosis of your connective tissue/ autoimmune diseases and start treatment.

Remember I am not a doctor and cannot diagnose, but the statistical likelyhood of someone having lupus if they have 4 criteria is more than 98%. Having 9 is pretty conclusive, and if the rashes can be proved to be lupus on biopsy, there is not a shaddow of a doubt about the diagnosis.

I hope you get to the bottom of all this soon,

X C X