[KarolH]

Thanks Lazy Legs.

 

[Jeffrey]

Claire, do you mind elaborating on your experience with Lymes? How bad was it? How long had you had it? Did it go away after the IV treatment? Did you get worse during the treatment than better afterwards?

If I do have it it means I have had it for about 7 to 9 years. I hope is it something they can get rid of.

 

[Clare.T]

Hello Jeffrey
I don't mind, although I am sure you would get more useful info on a Lyme Disease forum, but it isn't helpful to you and since I had already been diagnosed with lupus there wasn't a differential diagnosis element.

My brush with LD must go back almost 20 years.
I mentioned to my rheumy at a routine visit that I had been bitten about 5 months earlier. Blood tests showed very high levels of Burgdorfer borreliosis antibodies. I had 10 days of IV doxycycline infusions. Retesting afterwards showed that the treatment had been successful.
I just remember a mix of feeling fed up to the teeth at my huge bad luck at contracting LD at all and great good luck at having had the sense to mention it to my rheumy who happened to be very clued up about LD - he had been one of the first German researchers into it.

With hindsight I think I was feeling generally more unwell than usual, more tired and sweating unusually on exertion but I put it down to menopause. ( No www in those days )


Good Luck
Clare

 

[KarolH]

Claire, do you mind elaborating on your experience with Lymes? How bad was it? How long had you had it? Did it go away after the IV treatment? Did you get worse during the treatment than better afterwards?

If I do have it it means I have had it for about 7 to 9 years. I hope is it something they can get rid of.

If you think you may have LD then make sure your doctor does the Western Blot testing.

I sent you a pm with the LD forum I joined. Go register and check it out.

See you here or there...:wink2: