Hello Everyone,
I have been here before but never got a dx... however its all rearing its head again.
I have been tested for Lupus 2 times before but never shown anything postive.
I went to a follow up with my gasrto (as i have ?coeliac) and my iron leavels have dropped again and it got me thinking again as in my bloods i had done with him my ESR levels are high and this is a first for me. (just read the above st thomas alterntive things ) so though i would add my CRP was normal... under 1... I got dxed with fibromyalgia a long time ago so as usual i have symptoms that all over lap with each other.
my symptomes are well… you name it have it…many are the same as my fibromyalgia (i have all 18 tender spots of FM) I have swollen, stiff, painful and aching joints and muscles. Nearly every joint in my body worse ones are hips and knees wrist shoulders and elbows. My muscles feel like they are burning pain. Its always worse in the morning when I wake, they get really stiff when I sit or stand for a period of the ie if I sit with my legs crossed or under me… when I stand I cant move them and they are really painful. I get cold hands and feet, dry eyes, extreme tiredness and fatigue, hair loss more so my eye lashes so much so you can sometimes see huge gaps in them, headaches… i am anemic gosh the list goes on but they are the main ones the affect me. My hands also contract on themselves when I type too much. I to also have brain fog… (fibrio fog as I normally call it) I quite often get my words muddled or cant remember what I am saying one min to the next…
My gastro refused to refer me to rheumatologist and haematologist (both of whom I have seen before). As he thinks my anemic is bowel releated which i dont as i have no bowel symptomes of blood loss.... (think i might now that) and always labels things as my coeliac (which i dont think i have fully) and doesnt ever think out of his own box... and prob doenst know half the other things i have wrong with me anyway....
But i have spoken to my GP and i have an app with her nxt week and she is going to refer me to rheumatologist and haematologist. And i will try and see if she can do some of the tests i need done to egt the ball rolling but they normally go to a dif hosp so going to see if she can try and requet them at my hosp...so i suppose what i am after is what do you think.... i know it can take a long time and a lot of patince to get a dx and i am frustrated already as i have been saying this for a long time.....
Many thanks in advance....
natasha
I have been here before but never got a dx... however its all rearing its head again.
I have been tested for Lupus 2 times before but never shown anything postive.
I went to a follow up with my gasrto (as i have ?coeliac) and my iron leavels have dropped again and it got me thinking again as in my bloods i had done with him my ESR levels are high and this is a first for me. (just read the above st thomas alterntive things ) so though i would add my CRP was normal... under 1... I got dxed with fibromyalgia a long time ago so as usual i have symptoms that all over lap with each other.
my symptomes are well… you name it have it…many are the same as my fibromyalgia (i have all 18 tender spots of FM) I have swollen, stiff, painful and aching joints and muscles. Nearly every joint in my body worse ones are hips and knees wrist shoulders and elbows. My muscles feel like they are burning pain. Its always worse in the morning when I wake, they get really stiff when I sit or stand for a period of the ie if I sit with my legs crossed or under me… when I stand I cant move them and they are really painful. I get cold hands and feet, dry eyes, extreme tiredness and fatigue, hair loss more so my eye lashes so much so you can sometimes see huge gaps in them, headaches… i am anemic gosh the list goes on but they are the main ones the affect me. My hands also contract on themselves when I type too much. I to also have brain fog… (fibrio fog as I normally call it) I quite often get my words muddled or cant remember what I am saying one min to the next…
My gastro refused to refer me to rheumatologist and haematologist (both of whom I have seen before). As he thinks my anemic is bowel releated which i dont as i have no bowel symptomes of blood loss.... (think i might now that) and always labels things as my coeliac (which i dont think i have fully) and doesnt ever think out of his own box... and prob doenst know half the other things i have wrong with me anyway....
But i have spoken to my GP and i have an app with her nxt week and she is going to refer me to rheumatologist and haematologist. And i will try and see if she can do some of the tests i need done to egt the ball rolling but they normally go to a dif hosp so going to see if she can try and requet them at my hosp...so i suppose what i am after is what do you think.... i know it can take a long time and a lot of patince to get a dx and i am frustrated already as i have been saying this for a long time.....
Many thanks in advance....
natasha
!!!!
