Hi all,
Sarah has had her second last chemo Jan. 9th. As of the last couple of weeks her balance is so bad. She fell twice yesterday, and down the stairs this morning. She was on 20 mg of prednisone, so they moved her up to 30, then up to 40 this week and to followed Feb. 9th and for cyclo. I would have thought she would have been so much better. She speech is still good, but her memory is much the same. She had hoped to go to school grade 12 and take 2 classes and be home in the afternoon to rest. We got a call from Sick Kids and they left a message on our machine that she has a appointment in March with a neuropsychologist
we were unaware that this was going to be made?
On the positive side we got a kitten for Sarah a ragdoll muchkin who is a doll and a great distraction for her.
Sharon
Sarah 17 has CNS lupus (brain), with massive clott to the sagital sinus, and they tested for APS and it was negative 3 times. SLE, her joints are worse now as well with increased headaches.
Sarah has had her second last chemo Jan. 9th. As of the last couple of weeks her balance is so bad. She fell twice yesterday, and down the stairs this morning. She was on 20 mg of prednisone, so they moved her up to 30, then up to 40 this week and to followed Feb. 9th and for cyclo. I would have thought she would have been so much better. She speech is still good, but her memory is much the same. She had hoped to go to school grade 12 and take 2 classes and be home in the afternoon to rest. We got a call from Sick Kids and they left a message on our machine that she has a appointment in March with a neuropsychologist
we were unaware that this was going to be made?
On the positive side we got a kitten for Sarah a ragdoll muchkin who is a doll and a great distraction for her.
Sharon
Sarah 17 has CNS lupus (brain), with massive clott to the sagital sinus, and they tested for APS and it was negative 3 times. SLE, her joints are worse now as well with increased headaches.