Hi,
I am a married mother of 2 girls and was diagnosed earlier this year with mixed connective tissue disease and SLE, after many years of feeling unwell. Last month I had my first acute flare requiring hospital admission and am currently signed off work due to inability to walk properly, joint discomfort and extreme fatique.
I would be interested to hear how other people cope with coming to terms with this condition as all I have to go by is leaflets. I am usually a very stubborn, independant lady who is used to pushing herself to achieve her goals in life an get things done. I find it very hard to ask for help as have always done things on my own with minimal of help - which my husband finds frustrating as he watches me struggle to complete tasks!!!
I am a married mother of 2 girls and was diagnosed earlier this year with mixed connective tissue disease and SLE, after many years of feeling unwell. Last month I had my first acute flare requiring hospital admission and am currently signed off work due to inability to walk properly, joint discomfort and extreme fatique.
I would be interested to hear how other people cope with coming to terms with this condition as all I have to go by is leaflets. I am usually a very stubborn, independant lady who is used to pushing herself to achieve her goals in life an get things done. I find it very hard to ask for help as have always done things on my own with minimal of help - which my husband finds frustrating as he watches me struggle to complete tasks!!!