Joined
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8 Posts
Hello Everyone,
I was here a couple years ago, and for whatever reason, I haven't been around for awhile. I was diagnosed with sle in August 2005. I have had symptoms since I was in my pre teens, and was told everything under the sun from I was allergic to the sun, allergic to weeds, and grasses in the lake water, was being a hypochondriac, was just giving in to pain and fatigue.. to suck it up. Well, I have learned a lot from this site and a couple other support groups about lupus and how it affects us, both physically and emotionally.
I have a spouse , been married for 30 years, that tries at time to understand my physical limitations, but he really just doesn't get that when my body screams in pain and fatigue, that I have to stop and listen, and take care of me now.
For instance, our choir at church is presenting a Christmas program today, and because of the super active events of yesterday, I am in a self induced flare and physically unable to be a part of this event. Yes, it truly hurts me emotionally because I want to be at church, and also because I am missing time with one of the most precious things I have, my young granddaughter. It really hurt me emotionally to have to tell her earlier that Nana was too sick to come and drive her to church this morning. I know that I have to stay in , and rest today, and probably the rest of this week, except for the medical tests I have to have.
I have had a cyst on my left kidney for many years now and periodically have to have an ultrasound to monitor the cyst. WEll, the last ultrasound revealed a cystic structure that needs further imaging for more detailed pictures.. so tomorrow, I have to go in for a renal MRI with contrast. Contrast is hard on people with sle , and I know that I am going to probably feel a bit rougher tomorrow afternoon and will need to rest for several days.
Anyway, I am glad to be here. Pink Pearl is a good friend of mine and reminded me about this site.. actually sent me the link, and I had forgotten that I had been here before until I tried to register again.
I want to thank Joanne for being so helpful in helping me to get logged in again.. I am looking forward to seeing and learning from all of you fellow lupus survivors.
Take care
Peachy hugs
Gina
I was here a couple years ago, and for whatever reason, I haven't been around for awhile. I was diagnosed with sle in August 2005. I have had symptoms since I was in my pre teens, and was told everything under the sun from I was allergic to the sun, allergic to weeds, and grasses in the lake water, was being a hypochondriac, was just giving in to pain and fatigue.. to suck it up. Well, I have learned a lot from this site and a couple other support groups about lupus and how it affects us, both physically and emotionally.
I have a spouse , been married for 30 years, that tries at time to understand my physical limitations, but he really just doesn't get that when my body screams in pain and fatigue, that I have to stop and listen, and take care of me now.
For instance, our choir at church is presenting a Christmas program today, and because of the super active events of yesterday, I am in a self induced flare and physically unable to be a part of this event. Yes, it truly hurts me emotionally because I want to be at church, and also because I am missing time with one of the most precious things I have, my young granddaughter. It really hurt me emotionally to have to tell her earlier that Nana was too sick to come and drive her to church this morning. I know that I have to stay in , and rest today, and probably the rest of this week, except for the medical tests I have to have.
I have had a cyst on my left kidney for many years now and periodically have to have an ultrasound to monitor the cyst. WEll, the last ultrasound revealed a cystic structure that needs further imaging for more detailed pictures.. so tomorrow, I have to go in for a renal MRI with contrast. Contrast is hard on people with sle , and I know that I am going to probably feel a bit rougher tomorrow afternoon and will need to rest for several days.
Anyway, I am glad to be here. Pink Pearl is a good friend of mine and reminded me about this site.. actually sent me the link, and I had forgotten that I had been here before until I tried to register again.
I want to thank Joanne for being so helpful in helping me to get logged in again.. I am looking forward to seeing and learning from all of you fellow lupus survivors.
Take care
Peachy hugs
Gina
