Hi again All
I've been away from this forum for a while- mainly due to personal reasons and the way I was feeling both physically and mentally.
But just wanted to give you all a quick update on where I am right now in terms of this horrible disease.
To be honest, I have felt it getting a lot worse. I really was not expecting this disease to progress at the rate in which it has.
Right now I am suffering daily from differing aches and pains. One day it'll be my knees. Next day fingers. Next day neck etc etc etc
But I can live with the aches and pains in the joints. It doesn't concern me too much.
BUT it's the pains I get in the chest, ribs and back which are of major concern. I've seen my GP and rhumy who do not think it is of any concern right now. But the worrying thing is that recently I gave a urine test. The GP cleared this as "normal". BUT when I went to see my rhumy she said that the test came back as "incorrect" due to the GP giving me an incorrect sample bottle. So, in short, the GP actually lied to me about the test
My other big problem is SEVERE fatigue
I wake up tired. Am tired throughout the day. And go to bed tired. Am tired throughout the night. And then wake up again tired
I also suffer from severe light headiness and blurred vision. Eyes have been checked by an optician who has said there doesnt seem to be anything wrong at this moment. Fingers crossed.
Anyways, before I go off on one....
My rhumy has put me back again on plaquenil (400mg). She also suggested I begin steroids. But right now, as there hopefully is no sign of organ involvement, I am really against going onto steroids as I've been told that once you are on them it's not a good idea to go back off them!
Also, I've not been reacting too well to any kind of NSAID's so am currently on paracetemol alone.
Hopefully the sympoms subside a little in order for me to get back into my football and some other exercise routine which'll hopefully bring some life back into me
In case I don't see you all for a while, I just want to wish you good health and hope you all remain as symptom free as possible