Hi all, just when I was starting to come to terms with all of this got my new appt for the London Lupus Unit. They have scheduled to see me end of July 2010
I thought it was 2009 when it arrived and was ok with a few months to see how the meds were doing etc. if they had then left me for over a year I wouldn't feel so bad. I am completely heart broken, don't know how I will cope. I have just been prescribed the plaq and my GP knows nothing about it, don't even think he knew what it was when I mentioned it on the phone....He is fed up with me as it is
They never spoke to me about my illness at the Lupus unit. I didn't realise because I was coming online and this site has helped me so much. I had so many things to ask the specialist. I feel completely robbed. After struggling for al these years to get there only be doled out one drug and left again for 18 months is unbelievable :sad:
They never spoke to me about my illness at the Lupus unit. I didn't realise because I was coming online and this site has helped me so much. I had so many things to ask the specialist. I feel completely robbed. After struggling for al these years to get there only be doled out one drug and left again for 18 months is unbelievable :sad: