Long time no see guys :lol: I hope you all are keeping well and out of trouble.
Firstly, a massive apology to all for not providing updates. I've been meaning to to do so, but things have been absolutely manic (as always).
I started a new job in July which has taken up almost all my time, energy, sensibilities and slowly my health. I've been working up to 13 hour days and even when I stop, the duties and pressures continue running through my head. Not good! But for once, I've decided that there's more to life than money and work, so have decided to step back and go back to my old job - even though that now means that in about 6 months I may well be out of a job altogether. A BIG concern!!!
Due to the above, a few weeks ago I had my first proper flare up since I started the Benilumab trial (which finished a few months ago). I could feel it coming on, but I continued to push myself as pressures at work were so much I could not afford to take time off. I then was given the green light by my wife to go away on a surfing trip with a friend. Alas, that didn't go too well! After 30 minutes in the water, another surfer fell off his board and his board went flying in to my face. The water below was now scarlet and I initially thought I'd lost teeth!!! Fortunately, they were all there, but I had a massive gash on my chin and so off I went to A&E. I now have a lovely scar. I also severely bruised my ribs (again).
I stupidly returned to work on the Monday and went back to pushing myself. A few week later it was all over. I was totally floored and called in sick at work. I had an emergency appointment with my nephrologist who looked at my bloods and urine. Urine results were the best they've been since I was diagnosed with nephritis about 2 years ago - PCR range is now 35 - 50, which isn't too bad. But my DSDNA and inflammation markers are slightly on the rise. My nephrologist thinks this is due to the original Rituximab infusion now having worn off. She has suggested another infusion, which I have agreed to. This will now be in the new year (stupidly, I put work before the infusion!!!!)
My preds are back up to 10mg. And I'm feeling a little better now. I have a few more weeks in this job, then I'm back to my old job. Can't wait.
I'll then also get a chance to get my Lupus project back up and running. I'll give you guys more info on this as soon as I have something concrete to deliver
Now, I have my other boss (wife) shouting up at me for the last 20 minutes so should go, or else I'm up for a verbal battering
Keep healthy and out of trouble folks :thumbsup: