Congratulations on your improvement. Now what happens? Will you be put on Benlysta in the future if you had the real thing to keep the kidneys in check?
You have thanked us but I would like to in turn thank you. It takes people like you with the courage to participate in medical research to further the advancement of treatment for the likes of us. Also your posts may have helped others considering doing trials or trying to make a decision on trying the drug.
And there we have the proof. I forgot to let you guys know what happens next. :lol:I'm sure I've forgotten things to feedback. If I remember, I'll be Arnie and I'll be back..........
I always make a note on my Notes app on the phone. Date, effect, level of pain etc. My consultant finds it funny, but understands why i do it. I have a terrible memory :lol:A log of your painful days might be helpful for your upcoming appointment. The type of pain, how long it lasted and what you had done might be helpful to the doctor.