[little pig]

hi everyone, its just some reassurance that i think i need today as i'm in a really moany mood. I was admitted into hospital last week with a suspected dvt in either arm or lung, unfortunately at the frustration of my consultant i discharged myself the same night. Yesterday had my INR results and it was 10, i was admitted again and again i discharged myself. My partner is, along with my friends, at the end of his tether with me, but ive had so many bad experiences in hospital that i just cannot face a night, never mind a week or fortnight. Everything seems to be coming at once and i feel no one understands this fear.........mourngy me:sad:

 

[Joandublin]

Hi Kerry

I dont know what I can offer in the way of reassurances :worried: but that INR is worringly high. Did they put you on anti-coagulants last week? If so the dose might need to be adjusted and usually what they would do is stop the medication for a period of time and re-introduce at a lower dose or Vitamin K1 is given to counteract the effect of the medication and to bring your INR quickly back down again. However all of this has to be closely monitored and Im sure thats why they wanted you to stay in hospital. Your blood is basically too thin right now and you run the risk of haemorrhage.

There are other reasons for a high INR which need to be investigated if the cause isnt anti-coagulants. Im sorry you have such bad experiences of hospitals and have developed your fears as a result :sad: I dont know what those experiences were so its hard to give advice. If there were errors made in the past in your treatment for example, can a family member or friend talk to your consultant and the ward staff and explain your anxieties so that they can help you? Can a family member or friend stay with you in the hospital? Can a combination of minimum hospital stay and home care be looked at?

Sometimes we have to take the plunge and face our fears because there isnt another option. I would hate to think that you could have a major bleed or something like that at home. If that happened you would be whisked off to hospital and wouldnt really have any choice but to stay there.

Watch out for any unusual bruising or blood in your stool or vomit in the meantime and please seek urgent help for anything unusual in that way,

Best of luck
Joan:rose:

 

[Katharine]

Hello there,

I can't really add to what Joan has already said but wanted to send you some strengthening hugs :grouphug2:

I understand your fear and my Mum has the same one but please please be very careful.

:grhug:

Katharine

 

[debatat]

Hi, Joan has given you excellent advice. I can well understand your fear of hospitals, but sometimes we need to be there. As Joan said could someone not stay with you. I hope you can manage to sort something out.

Take care

Deb

 

[KarolH]

Little pig,

I am sorry your dealing with this and the lack of understanding from your partner and your friends. I understand what fear you are speaking of as I have it too. I had such a bad experience 2 years ago that I will NEVER go back into a hospital unless a family member is with me 24/7.

It is hard for outsiders to understand your fear because it belongs to you, make sense??? I can only assume that something pretty bad happened to you to make you decide your not going to stay in a hospital???

I hope you can get the help you need as a out patient but if not then you may want to ask a family member or friend to be by your side while in the hospital. Maybe that would take away some of that fear you have.

I just hope you get feeling better and get this sorted out. Sending you cyber hugs and crossing my fingers that you improve.:wink2::wink2:

 

[onetay]

Hi and Welcome,
I know that hospitals can be scary places, have you talked with the doctor's about your fears? I do understand that fear I have it too and will do anything to stay away from them. I must admit that I would rather spend a few days in one as a month because I could not bring myself to do the few days.

For many of us Hospital is a dirty word, but it sometimes is what keeps us home even longer in the long run. Find out if there is anyway to take a laptop with you so that you can stay in touch with us and others that you would like to and it will make the trip a little easier. Most hospitals have internet for their employees and in some cases they may let you us it from time to time. In your case if that would get you what you need then it would be something that I would make happen for you.

I am not sure I helped any but maybe I gave you something to think about that might make it a bit easier for you to when it is needed. Do what is best for you and those that you love.

 

[keebler]

Hi,

I can see why your friends and your partner are at the end of the ropes.
They are probably so scared about you and your health.
An INR that high is something that needs to be watched over. As Joan has said it needs to get checked out to find out the cause.

Have a talk with your doctor and explain about your fears.

Take care of yourself.
Lyn

 

[lin]

Hi sorry your not well, but i have to agree with joan and Lynn good luck and hope all goes well Lin xx

 

[little pig]

thank you everyone!!! what a lovely start to my day Ive been on warfarin 21 years now as i have antiphospolipid aswell as lupus. Ive had a few terrible experiences which include when i was 22 having a colposcopy (which i later found out was'nt neccessary as it was due to my lupus!) and the dr didn't anaethatise the area of my cervix properly and the pain was so intense and when i told the dr she said i was being silly and that involved 4 days stay in hospital because of warfarin. Also i was srerilised in 2001 and the nursing staff treated me as if i was abnormal and told me it was a pre elective op and women were on this ward to have children, not to be sterilised. the night i was sterilised the staff would not give me my lupus drugs and at half 12 at night i was on to my partner on the phone begging him to bring me home as they would not bring me painkillers and the morphine drip had been taken out earlier that day there are many other instances but these stick in my mind. thank you everyone for your care and cosideration

kerry (not as self pitying today!!!!!:lol

 

[KarolH]

Little Pig,

Sadly I know all too well how the lack of concern from hospital staff can leave us with a bad taste in our mouth and fearful to ever go back to a hospital again.

Like I said before, for me, if I ever have to go in then I will have a friend or family member by my side at all times. They can rotate the clock for all I care but someone MUST be with me or I simply won't agree to be admitted.

Fear is a horrible thing but very real and once you have a bad experience it is almost impossible to go back to the place you were before it happened.

I wish you well and welcome again. Join us in the chat room sometime.:wink2:

 

[dixy]

Hi kerry

So Sorry to hear youve had such alot of bad hospital experiences. To make you have to discharge yourself. Hospitals have PALS which you can contact them and let them know how you r feeling and perhaps they can sort this out for u.

Perhaps a different hospital. Im lucky where I go they have specialist unit for lupus and vasculitis.

take care (((((((((((((hugs)))))))))))))))

dixy