Hi - I'm wondering if anyone else gets blurry vision some mornings when waking? I've noticed it happens usually when I'm very swollen (CRP levels up). I do take daily Prednisone after waking which helps.
Hopefully there are other SLE patients that get this as - I spent last wk having multiple eye doctors tell me my eyes were fine... I got the feeling they thought I was making this up! It was like banging my head on the wall.... And last wk. my left eye was very painful & had a giant broken blood vessel in it (unusual for me). So after waiting for 3hrs+ in another "opthamology" Dr. office to be seen (yet again) I lost it & just cried & cried from the frustration & being told it might take another hour to be "seen". (Totally freaked the office staff out). I just felt like why do I bother to have it looked into?
I'm on 2000mg Cellcept daily. I took Plaquenil a few yrs ago but had vision problems then so they took me off. (Again the "eye" Dr.'s could not find anything to explain the vision issues but put me on mega steriods which helped).
So any insight anyone might have would be great.
PS: I have SLE, chronic infections, Raynauds, Arthritis, Migraines, Rashes/Hives, JointPain/Swelling, severe fatigue, muscle ache/pain, tenderpts, neuropathy, hair loss, chest pain etc. etc.
Hopefully there are other SLE patients that get this as - I spent last wk having multiple eye doctors tell me my eyes were fine... I got the feeling they thought I was making this up! It was like banging my head on the wall.... And last wk. my left eye was very painful & had a giant broken blood vessel in it (unusual for me). So after waiting for 3hrs+ in another "opthamology" Dr. office to be seen (yet again) I lost it & just cried & cried from the frustration & being told it might take another hour to be "seen". (Totally freaked the office staff out). I just felt like why do I bother to have it looked into?
I'm on 2000mg Cellcept daily. I took Plaquenil a few yrs ago but had vision problems then so they took me off. (Again the "eye" Dr.'s could not find anything to explain the vision issues but put me on mega steriods which helped).
So any insight anyone might have would be great.
PS: I have SLE, chronic infections, Raynauds, Arthritis, Migraines, Rashes/Hives, JointPain/Swelling, severe fatigue, muscle ache/pain, tenderpts, neuropathy, hair loss, chest pain etc. etc.