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Discussion Starter · #1 ·
I recently had a bone scan, which I was reffed to by my Rheumy. My next appt with him is on 21st July. Then today I got a letter from my GP giving me an appointment for this friday to discuss my recent hospital visit (ie the bone scan). I'm really worried now. I assume this is because its shown something up - is there anything not too nasty a bone scan can show?

Wendy
 

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Hi Wendy

Of course you must be concerned to get a letter out of the blue like that but it would really be impossible for anyone to say what might or might not have shown up. Bone scans can show up lots of things that xrays might not including stress fractures and infections to name but two. It can, of course, also show up certain bone diseases. Its really impossible to say what they have found until you see your doctor.

Try to take your mind off things this week as much as possible. Its a long way until Friday and you could end up out of your mind with worry if you dont do some distracting things. Maybe plan an evening out this week or have some friends over if thats possible. Sometimes just keeping busy helps the days pass quicker and hopefully on Friday you will have a better idea of what is going on.

Let us know how you get on. In the meantime lots of soothing hugs coming your way :hug: :hug:

Luv n stuff
Joan:rose:
 

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((((((Wendy))))))

Goodness lass you must be in a right state worrying about it. As Joan said it could be as minor as a stress fracture. On the positive side the doc may have made the appointment to say that the scan was clear. I'm waiting on my bone scan results too and I half hope they find something but half hope they don't!

Take good care and keep yourself busy. Please come back and let us know the results.

Sending you postive thoughts. :pixiedust:

Hugz, :hug:

Pam xxx
 

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Hi Wendy,

I can understand how you are worried. I hope it turns out to be something minor.

I thought I would share this story with you. Shortly after I started Prednisone, my rheumy ordered blood test; my GP called me into the office to discuss my blood work. Like you, I was terrified. When I got to the appointment, he said "I wanted to let you know that your adrenal glands have shut down and your body is no longer producing cortisol on it's own." I could have smacked him. That's exactly what Prednisone does (I think I have it right). I have no idea why he felt he needed to tell me that. It's the first thing they tell you when you take Prednisone. Plus there are no real risks with that. It's just difficult getting your body back in order while weaning yourself off the Prednisone. It cost me a few nights sleep and many days stressing for nothing.

Nutty
 

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was it a bone scan, or a bone density scan ? The two are very different tests, and abnormal results suggest different things.

I have a normal bone density scan (my rheumie put me on a biphosphonate and calcium to halt my bone density loss) but I have an abnormal bone scan. In a bone scan they inject a radioactive dye, send you away for a couple of hours then scan your bones to see what the uptake has been.

Mostly people have bone density scans with lupus - if yours was abnormal then there are fabulous drugs that rebuild bone, so don't panic. You will have lots of options available if your was abnormal (which you don't know yet).

If you are really worried, ring the doctors surgery and ask what it is about.

hth

raglet
 

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My bone scan shows an increased turnover in my bone, but my rheumie tells me that is common with lupus, and doesn't really mean much. So, I personally would want my rheumie to interpret the test - often I find that GPs don't really understand these more specialised types of tests.

Who ordered the test ? GP or rheumie ? oh, just reread your post, it was your rheumie. Personally in your shoes I would wait for the rheumie's opinion on the scan, they know more about this sort of test.

hth

raglet
 

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Hello

Could be showing Osteosporisis or possibly bad Arthritis. Those bone scans can show other things too. But I would try not to worry just yet until you see the doctor. Might be something very treatable and not as bad as you thought. But if your like me I get worried anytime shows up abnormal! Hope it's good news and not bad news! :)
 

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Hi,

Not going to be able to be on line for a couple of days so I just wanted to wish you all the very best for Friday.
:)
 

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Good luck tomorrow at your appointment

Luv n stuff
Joan:rose:
 

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Discussion Starter · #11 ·
Well.... It was one big mess up! I arrived to the appt to find the Dr the letter said it was with didn't work on a Friday and it was with another who I'd not seen before. He had no idea why I'd been called in. There was no info re my bone scan on the system. In the end he concluded that my GP had probably wanted to chat with me re a letter I recently sent her about my mental health provision. He reckoned I'd been wrongly sent a standard letter, though he couldn't explain how I'd been sent an appt on a day she doesn't work.

So, I am of course relieved that it was nothing scary - but furious about what happened.:mad: I think I'm going to formally complain.

Wendy
 

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Hi

I got a similar call from my GP. For some reason the GP was sent the results instead of my Rhummy. Turned out to be that via my insurance it had to go thru GP. they problem was that the scan showed arthritis......I was like OK what is the big deal. I knew I had arthritis my rhummy just never told my GP. I hope it is a simple as that.
I am not going to say don't worry.........It woul be impossile not to.

Elaine
 
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