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65 Posts
I talked to my GP about this feeling of poor concentration and confusion. I guess it is what everyone calls brain fog. She informed me it was a natural thought process when dealing with a chronic disease. You’re always in thought mode about your disease and everything else is secondary thus causing poor concentration and confusion.
Fine, fair enough, that sounds realistic, I think. Is it the real reason for the poor concentration and confusion, who knows? However, it is very real to us and quite frustrating. Now I ask you, do we all spend all day worrying about our disease, I guess we must and then forget that we do! I don't know about any of you but I have a diary that is marked up with reminders to do. It is a good way of keeping tract of important things to remember, that is if it works! I seem to spend most of my waking hours looking for the stupid thing! But not to worry! I have pads of paper in every room that I write notes to remember with dates as not to forget what I need to do! Maybe I should use these note pads to start a treasure hunt, winning prize, my lost diary.
I guess there is a medical reason for ever single complaint we have, there has to be as far as our doctors are concerned. I personally think that doctors who treat conditions and offer advice should suffer from that disease to actually have empathy and understanding! I once worked with a doctor who wrote a prescription for co-codamol 30 mg or what the US would call darvocet for a patient who is suffering from an obstruction due to a kidney stone. Now, I have passed over 30 kidney stones and I looked at this doctor and asked, have you ever had a kidney stone? I didn’t think he had because that dose of pain medication is a joke, morphine sometimes doesn’t resolve the pain. Now this situation only emphasizes that doctors need to suffer from the condition they are treating to truly understand and show some form of empathy and realize that every complaint doesn’t necessarily need to have a medical reason behind it, it is just a symptom of a nasty, nasty disease that us lupus patients have to deal with very day of our lives.
Fine, fair enough, that sounds realistic, I think. Is it the real reason for the poor concentration and confusion, who knows? However, it is very real to us and quite frustrating. Now I ask you, do we all spend all day worrying about our disease, I guess we must and then forget that we do! I don't know about any of you but I have a diary that is marked up with reminders to do. It is a good way of keeping tract of important things to remember, that is if it works! I seem to spend most of my waking hours looking for the stupid thing! But not to worry! I have pads of paper in every room that I write notes to remember with dates as not to forget what I need to do! Maybe I should use these note pads to start a treasure hunt, winning prize, my lost diary.
I guess there is a medical reason for ever single complaint we have, there has to be as far as our doctors are concerned. I personally think that doctors who treat conditions and offer advice should suffer from that disease to actually have empathy and understanding! I once worked with a doctor who wrote a prescription for co-codamol 30 mg or what the US would call darvocet for a patient who is suffering from an obstruction due to a kidney stone. Now, I have passed over 30 kidney stones and I looked at this doctor and asked, have you ever had a kidney stone? I didn’t think he had because that dose of pain medication is a joke, morphine sometimes doesn’t resolve the pain. Now this situation only emphasizes that doctors need to suffer from the condition they are treating to truly understand and show some form of empathy and realize that every complaint doesn’t necessarily need to have a medical reason behind it, it is just a symptom of a nasty, nasty disease that us lupus patients have to deal with very day of our lives.