[lynnenoble]

Hi

I Have The Various Symptoms Of Lupus The One That Really Annoys Me Is The Loss Of Memory And Consentration, And The Headaches Which I Have Everyday. I Have Also Sore Joints And Muscles And Feel Very Tired All The Time. I Also Have The Rash Over My Nose And Cheeks.
The Docters Have Sent Me For Tests But Say I Have Chronic Fatigue Syndrom As My Blood Tests Have Now Cleared Off All Signs Of Lupus. My Blood Tests In November And December Showed The Ana Positive. And My Liver Test Was Also Abnormal, So Now They Are Saying I Had A Virus Which Has Left Me With Cfs. I Do Not Know What To Beleive As I Still Feel Very Ill.
SO IF ANY ONE HAS ANY ADVICE IT WOULD BE MOST APPRECIATED AS I HAVE A DISABLED HUSBAND AND 2 CHILDREN TO LOOK AFTER
THANK YOU LYNNE

 

[Katharine]

Hello there,

I'm afraid I can't really help much but I wanted to welcome you and give you a few friendly hugs and encouragement :hug:

I'm not very good on such things but I am wondering why those two positive ANA results were ignored. Maybe they were low positives (which can be due to things such as viruses).

Have you been to see a rheumatologist and at the time of those ANA positives, was your ANTI DS DNA tested? That second test is more lupus specific than the ANA test which is a general screening test for many autoimmune disorders.

If at all possible, my advice would be to make sure you have a copy of your complete medical file including all tests done over the last year/years. Then, armed with that information and a list of your symptoms + photos of any rashes, swelling etc., I would try to seek a second opinion from a rheumatologist who specialises in Lupus. Some people choose to do that privately just to get the process going.

On the CFS front. Has any treatment been started? Have you tried it for long enough to know if it is helping? Where does the doc suggest you go from here?

bye for now,
Katharine

 

[lynnenoble]

they haven,t given me anything for the cfs, they said there isn,t any treatment for this. they are sending me to a rheumatologist for a second opinion the blood tests suggested I have me, sle, or ms I have been like this for over 5 months and this is really getting me down
thanks
lynne

 

[Clare.T]

Hello Lynne, here is a copy of your second post on this topic which adds info to the one on this thread. It;s best not to have two separate threads going on the same topic so I will delete your other which has no answers yet

I haven,t been diagnosed yet, keep getting headaches and sore throat along with itchy skin. I have positive ana blood tests twice and the other blood test was 1:730, i also have flue like symptoms when I do to much. I have several sore joints, and my feet go blue, red and white. The pam of my hands are red, with a marble effect at times. I am tired and fall asleep during the day, I can waken up in the middle of the night several times. I also have sore muscles, as the day goes on these symptons can get worse.
The worst off all these is forgetting things being confused and cannot concentrate very much. I am at the stage I do not want to go out, so that I do not have to speek to anyone.
I also have a rash over my nose and cheeks, which I was told was aczema, not convinced, also have a red patch over my chest with some large looking red marks. I can also have a sore chest and back, making me breathless at times. I always get breathless when I do anything in the house, eg house work, which I have to do as I have 3 children and a disabled husband.

CAN ANYONE GIVE ME SOME ADVICE AND HELP.

They say if the cant diagnose me they put it down to cfs.

Clare