Hi WP, I am glad that you had a nice time with your friend, we all deserve some down time with our conditions, unfortunately as seems to be norm, we usually have to suffer the next day, and it can make you feel dare to have some fun, you will pay later.
Yes you will have fun, more times that you probably think just now, they may be of shorter duration, take a whole heap of planning, and measures put in place to rest next day, or several days thereafter.
We are have glorious weather here in the UK, but I am so photosensitive, even covered, and screen I cannot go out in it, so this morning, my husband and I got up early, made a flask of tea, and wandered over our farm fields, watched the mist rise off the crops, and the rabbits and hares dart about, may not seem like much to some, to me it meant everything, tonight we are having a BBQ in the cool of the evening, being indoors I will have done the prep.
I am working myself up little by little to just achieve more, but respect my body as well.
Interesting that you cannot take red wine, my Rhuematologist advised me not to drink alchohol full stop, not that I care, I dont drink anyway, but perhaps it is because I have some renal involvement and disease she felt prudent to advise.
Day at time is my motto these days, and I cherish every single little thing I can do, and try very hard not to focus on what I cannot, its hard, very hard.
Sorry I am not making a very good job of saying what I mean really, I hope you can understand somewhat what I am trying to say. Brain fogged here.
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