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Discussion Starter #1
My doctor has recently diagnoised Lupus (although I am going to see a specialist regarding this), but my mum has just told me that before I was born, and whilst she was pregnant, she took drugs following a corneal transplant to prevent rejection. Does anyone know if this could increase the chances of me having Lupus?
 

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Hi Penny and welcome to the forum :)

I'm sorry to hear about your diagnosis and what brings you here.

You ask a very specific question there and I'm not sure I can answer fully but I very much doubt that would be the case as those are among the same drugs we take to control lupus.

Some of us, whose lupus can't be controlled with anti-malarials alone, take immunosuppressant drugs to dampen down their overactive immune response and therefore gain better control of their disease.

Unfortunately no-one really knows why we get lupus. There are many "triggers" that can contribute but no real known cause.

I hope that you will enjoy the forum and that we'll be able to help you with any questions you may have :)

Katharine
 

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Of course, while some immunosuppressants can be taken during pregnancy if necessary to control disease activity, certain others would be avoided but for different reasons.
 

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I don't think the answer to your question is known. There are many different theories as to what causes lupus, and some drugs can cause drug-induced lupus in people that take them directly, but I don't think any research has been done on the question you pose.

Welcome to the site and I hope you find some help, support and/or information here and possibly a new friend or two as well. ;)
 

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Hello Penny

All I can say is that I have never heard of any sort of medication taken during pregnancy causing lupus in a woman's children. I would like to say that when lupus is suspected and diagnosed it is very common for parents to blame themselves. Thats because good parents feel responsible for everything and anything that "goes wrong" with their children' lives, whatever it is.
We ourselves are tempted to seek an explanation. Depending on temperament and circumstances, this might include self blame and reproach.

Most if not all of the suspected triggers for lupus were unavoidable or couldn't possibly have been anticipated. My mother never thought of the one thing that could well have triggered my lupus thank goodness, although she drove me nuts trying to think of something to blame herself for.

However it is a pointless and destructive exercise that doesn't help anybody to deal with the situation. I would advise knocking this blame business firmly on the head, pointing out that it is most unlikely to be the cause, that there might well be multiple causes and it is better to focus on what to do now and how to help you best than brood over the past, even if it could be proved which it can't.

All the best

Clare
 

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Discussion Starter #6
Thanks for all your replies. I certainly didn't want to in anyway imply I blamed anyone or anything for this, I was just trying to look at reasons and also whether it could possibly have resulted in drug induced Lupus.

I’ve spent my whole life (30 years) suffering from joint pains. Initially these pains were just in my knees, but are now in my elbows, knees, wrists, ankles, toes and fingers. These pains were dismissed as growing pains until such a stage it was apparent I wasn’t growing any longer, and then doctors just kept telling me they didn’t know what was wrong with me. All through my teens I also suffered from migraines and abdominal migraines and I’ve spent the last ten years also suffering from constant headaches, frequent sore throats, IBS, occasional weight loss, fatigue, depression, eczema and itchy skin. All of these have been put down as stress, but now I’m wondering if it would all be Lupus. I don’t tend to have any allergies, although I do react badly to insect bites – they have become raised and started to track along my vein in red lines before, so I’ve needed antibiotics to clear them. In recent months I’ve also started needing to go to the toilet lots more than used to be normal, although I don’t have any pain when I do so.
Can you let me know if these sound like typical Lupus symptoms, or whether there is something else I should be looking into. I know I’ve had three lots of blood tests – one when I was about 5, one about 19 and one at 30, the first two blood tests were normal, whilst the most recent one showed an autoimmune abnormality. X-rays haven’t shown anything and my ESR was normal. My doctor did say it’s possible my ESR would only be raised when I was having a flare up, and since the blood test was midday my joints weren’t aching – I find they usually ache in the evenings, at night or very early in the morning, and they often mirror each other which seems to be a classic Lupus symptom, although I’m curious whether this is also common of any other illnesses.
 

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Hi Penny,

I hope you are able to see the Rheumatologist soon to get more thorough investigation. Not everyone with lupus has a raised ESR level, some doctors mistakenly think you have to, but just ask anyone around here! There are lots of other tests that will be run to rule it out or in and usually only a Rheumatologist will do them. Do you know if you have been tested for ANA? That's an antibody that is found in Lupus around 97% of the time, however it's not specific for Lupus you can have it in other conditions. It's a starting point if you like for investigations.

Here's a link to some more info on Lupus symtpoms and some of the criteria used to help diagnose it. Take a look and see if you can identify with some of it. Remember it does not have to happen all at the same time, nor will everyone have all these symptoms. They can form part of your health history.

http://www.uklupus.co.uk/dxlupus.html

Hope this helps, when is your appointment?

love
Lily
 

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Discussion Starter #8
Hi Lily

Thanks for your helpful support. Yes, I have been tested for ANA and the test was positive. I know my doctor said that the ANA findings were broken down further and it was the findings of this break down that prompted her to say she felt I had Lupus, especially with my long history of many problems I have had. I don't know yet when I will be seeing a specialist, but it should be in the next few weeks.

:)
 
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