Hi everyone
I went to the dr last fri as I felt horrendous and had a high temperature and sle was exacebated to say the least. He told me to increase pred upto 15mg (again) and advise on any other symptoms. I have no energy at all and want to sleep alot which I put down to the sle and other probs I have.
To cut a long story short I went to the dr again on Tues night and she found glucose in my urine and thinks I probably have steroid induced diabetes now or a problem with my kidneys
I had a blood fasting glucose test yesterday and the results wont be available til next week. I did email my endocronologist on tues night and he emailed me back in 10 mins (! he's such a fab consultant!) and said that even if this blood test is negative, which it could be I must have another random glucose blood test late afternoon as many steroid induced diabetic people dont register til the afternoon.
I know that everyone here has had such a bad journey with their sle and I have spent SO much time in and out of hospital with many things. I had a heart procedure last summer which tipped off postural hypotension and my postural orthostatic tachycardia syndrome (pots) (its autonomic neuropathy) and instead of coming off the beta blockers (I have reynaulds) I ended up on 2 further heart drugs as that was the only way they could stop my heart running at 140 bpm just sitting. I hate
the tabs as they make me fat (gone from a 10 to a 16) swollen ankles and the steroids have made me fat too my face is so balooned. I look in mirror and I dont see myself. They offered me another op but im scared something else will go wrong!
I really just dont know how much more I can take; I try to stay positive and happy, taken up my meditation again which helps but i cant believe i may have develloped another chronic condition. When i was on the ward they checked my glucose 2x a day and said i must do when i got home and talked to me gp but she said i couldnt have the glucose kit as there was no reason i would get diabetic (LOL) so i did ask her to note her refusal on my records.
I feel so alone at times and im sorry if this is a long post. It might seem trivial to some poeple but it seems like most of my organs have been affected at some stage.
Fortunately im going to see Dr Cruz on thursdy 1st may as an urgent so i hope he can help me feel better!
Hugs to all
Julia x
I went to the dr last fri as I felt horrendous and had a high temperature and sle was exacebated to say the least. He told me to increase pred upto 15mg (again) and advise on any other symptoms. I have no energy at all and want to sleep alot which I put down to the sle and other probs I have.
To cut a long story short I went to the dr again on Tues night and she found glucose in my urine and thinks I probably have steroid induced diabetes now or a problem with my kidneys
I had a blood fasting glucose test yesterday and the results wont be available til next week. I did email my endocronologist on tues night and he emailed me back in 10 mins (! he's such a fab consultant!) and said that even if this blood test is negative, which it could be I must have another random glucose blood test late afternoon as many steroid induced diabetic people dont register til the afternoon.
I know that everyone here has had such a bad journey with their sle and I have spent SO much time in and out of hospital with many things. I had a heart procedure last summer which tipped off postural hypotension and my postural orthostatic tachycardia syndrome (pots) (its autonomic neuropathy) and instead of coming off the beta blockers (I have reynaulds) I ended up on 2 further heart drugs as that was the only way they could stop my heart running at 140 bpm just sitting. I hate
the tabs as they make me fat (gone from a 10 to a 16) swollen ankles and the steroids have made me fat too my face is so balooned. I look in mirror and I dont see myself. They offered me another op but im scared something else will go wrong!
I really just dont know how much more I can take; I try to stay positive and happy, taken up my meditation again which helps but i cant believe i may have develloped another chronic condition. When i was on the ward they checked my glucose 2x a day and said i must do when i got home and talked to me gp but she said i couldnt have the glucose kit as there was no reason i would get diabetic (LOL) so i did ask her to note her refusal on my records.
I feel so alone at times and im sorry if this is a long post. It might seem trivial to some poeple but it seems like most of my organs have been affected at some stage.
Fortunately im going to see Dr Cruz on thursdy 1st may as an urgent so i hope he can help me feel better!
Hugs to all
Julia x