Hi all,
Sarah has been on cellcept since March starting with low doses, taking on a empty stomach. Started, stopped started, all instructed by the Rheumie because she couldn't stop vomiting. The last 3 weeks its just been nausea not vomiting and we are at a 1000mg. dose.
I had call the Rheumie nurse, and she bumped up our appt. a week as I am little concerned about her symptoms.
Her reynauds is even more prevalent, nasal and mouth sores. Her hands hurt so much she finds it difficult to write at school, and daily headaches that are bad enough even she decided that she thinks she needs a CT. Her fatigue is relentless.
My question, all those symptoms had minimized with the chemo infusions times 7 months. The cellcept seem like it's not slowing her immune system I am worries we are going to go backwards.
How long does it take for cellcept to work?
If it is not working what next?
The poor girl has went through **** and back, she has been so positive since July 2007, but I think she is loosing spirit. Daily even the nausea is draining let alone all the other symptoms. She just wants to be a normal teen.
Hopefully someone can give us a little light at the end of this tunnel.
Sharon
Sarah:
SLE,Reynauds,APS, stoke,seizures, CNS Lupus hers affecting her brain.
Sarah has been on cellcept since March starting with low doses, taking on a empty stomach. Started, stopped started, all instructed by the Rheumie because she couldn't stop vomiting. The last 3 weeks its just been nausea not vomiting and we are at a 1000mg. dose.
I had call the Rheumie nurse, and she bumped up our appt. a week as I am little concerned about her symptoms.
Her reynauds is even more prevalent, nasal and mouth sores. Her hands hurt so much she finds it difficult to write at school, and daily headaches that are bad enough even she decided that she thinks she needs a CT. Her fatigue is relentless.
My question, all those symptoms had minimized with the chemo infusions times 7 months. The cellcept seem like it's not slowing her immune system I am worries we are going to go backwards.
How long does it take for cellcept to work?
If it is not working what next?
The poor girl has went through **** and back, she has been so positive since July 2007, but I think she is loosing spirit. Daily even the nausea is draining let alone all the other symptoms. She just wants to be a normal teen.
Hopefully someone can give us a little light at the end of this tunnel.
Sharon
Sarah:
SLE,Reynauds,APS, stoke,seizures, CNS Lupus hers affecting her brain.