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Discussion Starter · #1 ·
Hi everyone,

This is my first time posting on this board. I have lupus, diagnosed in 2005. Over the past year, I've experienced chest pain 4 times. I told my rheumy after the 2nd time. She sent me to the cardiologist in July. The stress test revealed nothing. This past Tuesday, the pain lasted 30 minutes so I went to emergency. I also had a headache, jaw pain, and nasuea. I was scheduled to have a CT Angiogram. However, after given meds over a 12 hour period to slow my heart rate enough to take the test, it didn't work. I was also given fluids to slow down my heart rate. Nothing worked. So, they switched tests. I had the nuclear stress test. When the PA came back w/the results (not the cardiologist!), she explained that the stress test revealed nothing.

My problem is, I asked the PA (who mainly works in a dermatologists btw) if the nuclear stress test would reveal if I had minimal to moderate plaque which I know is something people with lupus commonly experience. She said no and that the stress test only looks @ my heart whereas the CT Angiogram looks @ my entire chest cavity. When the emergency doctor initially explained that he wanted to do a CT Angiogram, he also explained that it would be more extensive than the stress test I had in July. I was happy about that. So, the nuclear stress test didn't calm any of my fears.

My question is, if my stress test came back negative, does that mean my chest pain isn't heart related? Secondly, I know that the lining around my lung or heart could cause pain but it seems from what I read, that type of pain is experienced or worsened when taking deep breaths. That's not how mines is. It's also not indigestion. I'm convinced. Thirdly, what would you do? Any advice is greatly appreciated! Oh, I guess I'm wondering if it is Angina. I've read that an EKG can come out normal in up to 50% of people.
 

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Welcome to the site.

I can not help much here with advice but I wanted to share with you that I get chest pain too and all the tests pretty much come back normal. It is frustrating when you feel like something is wrong yet you can not find answers.

I hope you eventually get to the bottom of things. Keep your chin up.;)
 

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Hi,

I would continue further investigating with your cardiologist. There is more tests that they can perform on your heart. Stress test can miss blockages. There is a new test that is called CTA test.

I am sorry that you are having this problem
Let us know how you are doing.

:foryou:
Lyn
 

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Discussion Starter · #4 ·
thanks you guys!

yes, i agree, this is very frustrating knowing (well thinking) that another episode will come and i don't know why. i see my cardiologist on the 16th. i will just continue to be vigilante and proactive towards my health. wish me luck!
 

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For a year and a half, I was having crushing chest pains, like a mac truck parked on my chest, and stabbing chest pains, like a butcher knife was being plunged into my chest, accompanied by dizziness, sweats despite feeling cold and clammy, nausea, heart flip-flopping, etc. Also loss of vision momentarily plus other symptoms including numbness in my face two times during the time period the heart stuff was going on.

Had to go to the emergency room a couple of times. Had a battery of tests done over that time period: EKGs, nuclear stress tests, echocardiograms, holter monitor for 48 hrs, had to wear another kind of heart monitor for a month, chest x-rays, and CT scans. Nothing was found other than PVCs and PVAs (pre-beats or something like that) so the cardiologist scheduled me for an angiogram (invasive) because he was concerned I had a blockage.

By that time, I had learned that the meds I was on could cause the kind of heart problems I was experiencing so I asked that a CT angiogram (also known as a CTA) be done instead. Everything looked good, nothing physically wrong with my heart, so, against my doctors wishes, I stopped the meds. My heart problems cleared up. Prescribed different meds, heart problems developed again, stopped meds, heart problems subsided.

This pattern happened two more times (4 times in all). Eventually a pain specialist explained to me in technical detail why the meds were causing me so many problems. I now know that I must be very careful with all meds and, when problems develop, consider med side effects first and try stopping meds to see if the problem clears up before agreeing to other tests. I don't think I would know this now though without going through all of those tests first.

The meds that caused me to experience heart problems: Relafen (nabumetone), Ultram (tramadol), amitriptyline, clonazepam, baclofen, Skelaxin and Flexeril. Amitriptyline and Flexeril also caused seizure-like activity.

I had other tests done because of possible TIAs (CT scan and MRI of brain, dopplar ulrasound of carotid ateries) and it was discovered I have cerebrovascular disease --- the probable cause of the TIA-like episodes although the TIA-like episodes have stopped since I stopped the meds causing heart problems so I can't help but wonder if the med-caused heart problems caused the TIA-like episodes.

I'm telling you all of this just in case any of it might be relevant to your situation. Heart problems like what you describe need to be evaluated by your gp and/or a cardiologist. The fact that they couldn't slow down your heart enough to do the CT angiogram should be looked into as well as the source of your chest pain.

Hope this helps.

Barb
 

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Discussion Starter · #6 ·
Barb G;560332 said:
The fact that they couldn't slow down your heart enough to do the CT angiogram should be looked into as well as the source of your chest pain.

Hope this helps.

Barb
thanks so much for your entire post barb! it helps alot. i agree so much w/you. i'm in the hospital for chest pain (which was my 4th or 5th time experiencing this type of pain) and my heart won't slow down enough to even take the CTA even after 3 pills (can't remember the name) and iv fluids. duh!!!! something could potentially be wrong. i was thoroughly disgusted and still worried after i left seeing that nothing had really been accomplished by having the nuclear stress test. i'm going to print out your reply, read it over again, & come up w/questions to ask the cardiologist when i see him on the 16th. i'm not leaving until i get some answers. lol. i'm serious. i'm a psychologist and i am supposed to come up w/theories and test them on my clients w/variosu tests and different scales. if i'm wrong w/1 i use another to finally come up w/a conclusion. parents of children i evaluate aren't ok w/me saying "gee, i don't know what's wrong." i expect the doctors to do the same! again, thanks so much for your insight!
 

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Hi, just wanted to wish you well for your appt with the cardioligist. Being prepared for the appt with all your questions will be helpful.

Deb
 
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