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· Administrator
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Hi Jen,

Dealing with a chronic disease definitely isn't easy, especially when it messes with your brain. Learning how to deal with it is just as important as taking the medications. I am proud of you for giving the therapy a try.

Take care,
Lazylegs
 

· The Other Illinois Tammy
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Jen,
It sounds like you have a lot going on that you do need to handle and deal with. It also sounds like you need a hug and all the support you can get from us to get through all of this as easy as possible. You are right emotions that we feel can fuel or feed a lupus flare to happen and I do hope you can avoid this from happening. I hope you are doing well and feeling well also. I am here if you need me.
 

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Well done Jen! Im very proud of you ;)

Yes, it is very hard to acknowledge our demons:hug: Given the choice between doing that and diving under the warm embrace of a duvet, I know which one I would prefer to be doing ;) May you go from strength to strength.

You are very brave and Im sure you deserve an extra gold star as well!

So here's another one for your copybook!

Well done again!

Luv n stuff
Joan:rose:

 

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Hello Jen,

Yes it is very hard to face demons and takes a lot of bravery to do that so well done you!!!

I think this is definitely a living with lupus topic. It is very much a part of lupus for some people and I think that this journey you are embarking on is one that many before you have found very beneficial and that many after you will need to face into.

In the hard moments, keep in your heart and mind that this is a sort of new beginning in many ways which can make a huge different to life and how you deal with it.

huge hugs :grouphug2:
Katharine
 

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Good for you! I'm sure there are many more gold stars to come too. :)

I'm a big time believer in the benefits of cognitive behavioral therapy. I went to a therapist in CBT *just* for learning a better way to think/handle living with lupus. My therapist specialized in treating people with chronic disease.

The nice thing about CBT is it really isn't about dwelling on the past and negative things from there... but learning a new way to live with what is in the now. It is also usually a short term therapy which is nice ;)

Way to go... keep working it. I'm sure you will benefit greatly from this.

(((hugs)))
 

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WAY TO GO!!!!!

Jen I am very proud of you that you are taking this step, advocating for yourself and taking control is not an easy step to make, but when we do, it makes the biggest difference in our lives!!!!

P.S. I guess I am a dunce...I don't understand the Gold Stars thingy, I know I don't have any, but believe that you deserve a whole row of them!

Stay strong - Love Stephanie
 

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Jen, I know what you mean:)

Im personally convinced that even despite circumstances and background that when lupus strikes the brain it causes mental and emotional trouble.

What comes up and feeds into that state is anything and everything that 'hovers' from the past, ie fears and insecurities.

And

Anything that 'hovers' from the present ie the psycological trials of dealing with a chronic illness and coming to terms with that .

The thing is that its such a rollercoaster, the only sane way to deal with it is CBT as it deals and challenges the present.

I would fall at the knees of a person who is also trained in dealing with chronic illnesses.

It takes a lot of character to face a problem and try and deal with it.

Biggest gold star:)
 

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:hug: :bigsmile: I'm really impressed Jen, this is going to work out for you and become a little easier, I can feel it in my Lupie bones :)

sending hugs,

Lily
 

· Lisa_S
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302 Posts
Congratulations - I know CBT isn't an easy road.

As a chronic "catastrophic thinker" , I actually started a working through a workbook for CBT called "Change your thinking" by Sarah Edelman that came recommended by a psychologist. I confess it felt like way too much like school work and I gave up, but I'm going to dig it out and give it another try!

Lisa
 
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