Hi everyone,
I would really appreciate some advise regarding coming off Prednisone as this has been my first time on it and im not sure what to expect.
I started off only on 20mg for a few weeks and then had to taper down to 5mg then off.I had my last tablet 9 days ago and have been really going downhill fast since,so much so i could hardly move yesterday,and was dying to come on and ask questions but was far too sore to do so,and im not really any better today.All my usual flare symptoms are back with a vengence, joint,jaw,back,hip chest pains, mouth ulcers,nasal sores etc etc
I was at my Rheumy just before coming off them and his advise was to wait for some "rebound" thing to happen whereby i will feel as good as i felt on the Pred.Has anyone every heard of this and how long am i expected to wait & see an improvement?
I feel like my lifeline has been snatched away from under my feet.
Any replies would be much appreciated.
Much luv Gwennie xx
Ps i am also experiencing very spontanious jerky movements from my arms and legs and it is driving me crazy,anyone else experienced this?
I would really appreciate some advise regarding coming off Prednisone as this has been my first time on it and im not sure what to expect.
I started off only on 20mg for a few weeks and then had to taper down to 5mg then off.I had my last tablet 9 days ago and have been really going downhill fast since,so much so i could hardly move yesterday,and was dying to come on and ask questions but was far too sore to do so,and im not really any better today.All my usual flare symptoms are back with a vengence, joint,jaw,back,hip chest pains, mouth ulcers,nasal sores etc etc
I was at my Rheumy just before coming off them and his advise was to wait for some "rebound" thing to happen whereby i will feel as good as i felt on the Pred.Has anyone every heard of this and how long am i expected to wait & see an improvement?
I feel like my lifeline has been snatched away from under my feet.
Any replies would be much appreciated.
Much luv Gwennie xx
Ps i am also experiencing very spontanious jerky movements from my arms and legs and it is driving me crazy,anyone else experienced this?