Howdy! My boyfriend and I have a long distance relationship so we don't get to see each other as often as we'd like.
He's a surfer so obviously he wants me to spend alot of time with him at the beach... not good for me. Managed ok with just short trips and keeping mostly covered up. The day before new years was terrible, struggled to get out of bed, couldn't face day light and could barely put a sentence together! Couldn't understand why I was so miserable that eve, so many people, music was too loud and I just wanted to sleep! So basically I landed up spoiling his new year!
Don't think I was very coherent but explained that constantly being in the sun breaks down my immune system and I'm more likely to feel ill. I don't think he took me seriously. At this point I was only aware of my DLE and didn't realise I was having SLE symptoms.
I know I should just be direct with telling him but I struggle pretty badly with putting my thoughts into words so I've printed some info on Lup from the net. I think I'm being paranoid that he won't understand!
He's a surfer so obviously he wants me to spend alot of time with him at the beach... not good for me. Managed ok with just short trips and keeping mostly covered up. The day before new years was terrible, struggled to get out of bed, couldn't face day light and could barely put a sentence together! Couldn't understand why I was so miserable that eve, so many people, music was too loud and I just wanted to sleep! So basically I landed up spoiling his new year!
Don't think I was very coherent but explained that constantly being in the sun breaks down my immune system and I'm more likely to feel ill. I don't think he took me seriously. At this point I was only aware of my DLE and didn't realise I was having SLE symptoms.
I know I should just be direct with telling him but I struggle pretty badly with putting my thoughts into words so I've printed some info on Lup from the net. I think I'm being paranoid that he won't understand!