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hellooo everyone!!...don't know if im writing this in the wrong part..but if i am, sorry!! :hehe:
Rightttt.. i have lupus nephritis class 4, for those of you that dont know me!!..i had a hospital appt with my nephrologist about 3 weeks ago now..everything seemed fine at my appt..but i always have blood tests afterwards so i had them done as normal. the results go to my nephrologist but also to my GP to let him know whats going on with me..but i also receive the letter that is sent to my GP so i know whats going on too.
Everytime i get these letters, they are always positive and manage to put my mind at rest untill my next appt! (im a worrier!! would you believe
)
i received the letter from my last appt about 5 days ago now but im really confused about what it means!
it says that my last PCR was 27 (whats PCR?!?!?) and i was negative for protein which is good..but but says he has noticed that the creatinine levels are lowly rising..which i know is not good..but is this anything to worry about as im feeling really well. them levels are rising but im still negative for protein? when i was in hospital in oct 07 before diagnosis, my creatinine levels were 122 (which i was told was start of kidney failure) and they managed to get it down to 80..but now theyre rising! but not sure what they're at just now which doesnt help at all
it also says there has been no anti-DNA antibody titre for a while, so he did an extra blood test...what is an anti-dna antibody..ive never heard of it!!
although this sounds like a problem to me...he still reduced my prednisolone down to 5mg daily..and still doesnt want to see me for 2 months? so am i worrying over nothing or is this something to worry about?? please help!!!
thanks!! ..and sorry its abit long!
claire xx
Rightttt.. i have lupus nephritis class 4, for those of you that dont know me!!..i had a hospital appt with my nephrologist about 3 weeks ago now..everything seemed fine at my appt..but i always have blood tests afterwards so i had them done as normal. the results go to my nephrologist but also to my GP to let him know whats going on with me..but i also receive the letter that is sent to my GP so i know whats going on too.
Everytime i get these letters, they are always positive and manage to put my mind at rest untill my next appt! (im a worrier!! would you believe
i received the letter from my last appt about 5 days ago now but im really confused about what it means!
it says that my last PCR was 27 (whats PCR?!?!?) and i was negative for protein which is good..but but says he has noticed that the creatinine levels are lowly rising..which i know is not good..but is this anything to worry about as im feeling really well. them levels are rising but im still negative for protein? when i was in hospital in oct 07 before diagnosis, my creatinine levels were 122 (which i was told was start of kidney failure) and they managed to get it down to 80..but now theyre rising! but not sure what they're at just now which doesnt help at all
it also says there has been no anti-DNA antibody titre for a while, so he did an extra blood test...what is an anti-dna antibody..ive never heard of it!!
although this sounds like a problem to me...he still reduced my prednisolone down to 5mg daily..and still doesnt want to see me for 2 months? so am i worrying over nothing or is this something to worry about?? please help!!!
thanks!! ..and sorry its abit long!
claire xx