[macfamily53]

Well not sure of how to start this but here it goes.I was driving on tuesday morning with my daughter when all of sudden i was having trouble with my IBs to the pint it was making me so sick and so much pain i could not stand it.Now anyone that has this IBS knows that it is beyond horrible the pain for it.I am very stubborn to say the least when it comes to me not feeling well but i just keep on going grrrrrr.

Well anyway it got to the point that the pain was causing me to feel like my eyes were going dark rather quickly.Well anyway the next thing i know i heard an ambulance coming near and my daughter told me that she had to call the ambulance because my eyes were rolling around and i was also spitting and falling forard to.Well long story short they told em that the major pain from the IBS and was the reason for the siezure i had>sorry but that is why i was spitting eyes rolling and falling forward.I was just so glad i did pull over just in time no doubt.I am just wondering if i should be worryed about this and check with my family doctor if he think i sould e driving or if it from something else.My blood preasure was also 88 over 22 after the seizure.Now that scared me when they told me that .

This doctor in the emergency room said that he was surprised to hear i had lupus but not scholoderma along with the raynaunds.he said exactly this that it usualy goes along with the scholderma not lupus.I been having for months trouble with my hands getting real stiff and at night also.My hands and wrist also are swollen in such a strange wa.I also have a rash that may not have anything do with the other on my wrist.This was also very scarey also about the schoderma instead of lupus.Well any advice would be appreicated.Oh my what a week also

Oh he did also tell me the doctor in the emergency room that the pain from the IBs was what caused me to have a seizure.Now they did not run any kind of test all to check to make sure of this.Well thanks for any advice.

Tammy

 

[Sage Hen]

Hi Tammy,

I don't know much about scleroderma. I have a friend with it, but it is mild.

I just want to say, I am glad that your better now, and didn't have an accident.

How scary for both you, and your daughter.

Love,
Sandy

 

[confused1]

(((((((((( Tammy ))))))))))

My dear friend, I have no advice but want to send hugs and good thoughts and wishes. I'm really glad you pulled over and didn't have an accident. What a scary thought! I hope you will see your regular dr. and talk about the seizures. I have never heard of intense pain causing a seizure, although it sounds logical enough. Please do get yourself checked out quickly.

Hugs and prayers,
Sunny

 

[neongirl]

I am so glad to hear you and daughter are o.k.. I have not heard that about the scleroderma being present with raynauds, but not Lupus with raynauds. I have SLE and Raynauds, but no scleroderma (at least I hope not), however my ana is speckled pattern and I was told that that can be indicative of several autoimmune conditions, not just Lupus.
I have struggled with IBS for years, and you are right, the pain is horrendous. I have never had a seizure from it, but I have passed out. Did they give you anything to settle it down, or anything for the pain in the ER? I hope your Dr. can shed some light on all of this. I hope you get to feeling a lot better soon.

 

[Joandublin]

(((((((Tammy)))))))

How very scary for you and your daughter:sad: Most definitely I would follow this up Tammy. I wouldnt be happy to just accept someones word that the IBS pain caused the seizure:worried: The causes of seizures really should be investigated properly and I would hope that your family doctor will follow this up for you.

When do you see your own Rheumatologist again? I think you should let them know about the seizure as there could be other reasons for it related to your Lupus.

I dont know enough about scleroderma to make comment on what he said but you should mention it to your Rheumatologist. I may be wrong but I wouldnt get overly concerned about those kind of comments coming from an ER doctor. They arent experts in Rheumatology and I would tend to listen more to your specialists.

Tammy this may be way off the mark but I know you mentioned last month that your thyroid was way too low. There are some (very rare) conditions related to untreated hypothyroidism which can cause seizures and rashes. See under Emergency Conditions in this link

http://adam.about.com/reports/000038_5.htm

I certainly dont want to frighten you or anything but I just think its very important to properly investigate the causes of seizures.

Please let us know how you are when you get a chance.

Much love
Joan:rose:

 

[keebler]

(((Tammy)))

How very scarey for you and your daughter. Thank goodness for cell phones.

I think your seizure and ibs troubles should be looked into further.

Hang in there my friend you have us here.

:love2:
Lyn

 

[Karly1964]

:worried: Oh, my goodness I do know that pain from IBS, I have had it since I was about 12 years old, and have had many boughts with it. But still with your lupus I think you should really get tested for other reasons why you might have had a seizure, especially what Joandublin said, you don't want to assume everything the er doc said was totally correct, my sister works in an er an can tell you that often er docs think they know more about stuff like that than they do. Please take care, give your daughter an extra hug and yourself one too. (((((HUGS)))))

 

[macfamily53]

Thank you everyone for such wonderful support and imformation to.I am going to call my gp tomorrow and make an appointment with him to see what he says.I did email my rhueme because she is like 90 minutes away.I am really hoping she will call me and not email me but will see what happens.I will let everyone know what i do find out i promise.Joan i also did look into the sight you put up in here and it was very resourceful for sure,It was real intersting to read some of it but not scarey really.I just hope i can find out something about everything.

(((((((((((((((((((hugs))))))))))))))))to everyone

 

[macfamily53]

had the test done finally

I just wanted to let everyone that posted to me that i did hvae some test finally run to figure out wether or not i had the seizure that day like three weeks ago or so while driving.I had to get only four hours of sleep last night It wqw so hard to stay awke until 1:00 in the morning and to turn around and get up at 5:00 after only four hours of sleep:sad: and stay awke until well right now it is like 11:51am .Well i made it through it all and will not no much for awhile though .I just wanted to let you know that the EEg and the ultra sound and cat scan went well and cannot wait to find out what this was and why it happened.I will let you know when i know:hehe: .

Thanks my friends

Tammy

 

[neongirl]

I'm glad you made it through all of the tests o.k. and hope the results give some answers as to what caused the seizure. I hope you have slept a bunch since your last post:yawn: , take care

 

[IBDOROTHY]

so glad to hear you got those tests out of the way. I started in the summer of 1996 with fevers of unknown origin and then 1997 had my seizure. i was put on tregrotol for that incident and although some of my beta waves were a tad off they were unable to find a 'cause' for the seizure. looking back, i just lumped it into "i didnt know i had lupus and everything else" when that happened. last summer had ibs pain and oh my gosh that really, really hurts and i havent officially been diagnosed with that disease. I have raynaulds but didnt know what it was until i was given the sle/mctd reason for my years of misery. i had rashes on my hands, arms and feet which found sclerderma(?), polymyototis, dermatomytosis and by then evidence of facial involvement and discoid lupus. anyway, if i understood it right, they had hard to say it is 'this' without doing a biopsy. it is hard dealing with all the variety of illnesses that come with autoimmune problems and almost needing a doctor for every specfic aliment we have but the disease is so complicated that it is hard to rely on any one doctor to have a grip over everything that is possible. glad you got the battle of tests done and maybe that will give you a sense of peace of mind and allow you to get some much needed rest. best of luck to you and your family. sorry if this is jumbled..., that kind of week

 

[Joandublin]

Hi Tammy

Well done on trying to get to the bottom of this. I hope you get those results soon and also that you get some well needed sleep! Let us know how you get on

Take good care
Joan:rose:

 

[pennylp]

HI TAmmy,

Thank goodness you pulled over.... You could have had a bad accident... That must have scared your daughter and you to when you came to...

I am glad they did tests I hope everything comes out well ... Does it ever end there is allways something isnt' there...You must be so frustrated I know I would...

I am glad you are ok and I hope you get the results back real soon... Take care of yourself.. And Please know I think Of you all the time...

Love your friend

Penny xoxo

 

[macfamily53]

I would like to let everyone know whom was very much here for me in the last month or so while the doctor tryes to figure out what to do about what definately seemed to be a seizure while driving.I had my eeg and my cat scan and my ultra sound of my ateries in my neck,Idid hear back about all of my test i had done and they are saying they all came back in the normal range.I am very grateful for that and for the support i got from everyone in the chat that was there for me(((hugs))).
I just in the back of my mind i am sill playing out the day that it happened and why if it is nothing showing in the test then why did it happen.Well as i already knew i was not going to know why for sure and i need to put it in the back of my head.It is one of those things i guess that will never know and i am praying i never go through it again either.Well thanks again to everyone and wow to everyone that ha suffered a seizure i really hope you never do again and i most certiantly understand how scarey it can be(((hugs))).

Tammy