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Hi there , i'm audrey 47 yrs old , mum of 3 girls .grandma of 1 wee cutie ( eve )
i need to find out how to approach my doctor about my health , for the past 4 months things for me have been pretty bad , ive had what appeared to be constant chronic allergic reactions to everything , sunlight , heat , stress , myselfit seemed ,i felt as if my body's immune system was fighting itself ,my memory is so bad i began worrying about early dementia , my hands hurt so much and are rashed and painful particularly my fingers ,i'm so tired that even holding my mobile phone tomy ear for a few minutes hurts my arms , my joints ache constantly ,particularly my hips and knees .Problem is my doc now looks at me as if he just doesnt know what to do next . I have been treated for the allergic reaction which then produced more reaction from the drugs i was given , a few days ago i just stood in my living room and cried my eyes out as i feel i can touch nothing without a consequence . These symptoms vary from mild to chronic although since the onset i have not had one day pain or symptom free . Is this Lupus .
 

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Hiya Audrie, I am 45 and got told I had a virus for the first few months of suffering the onset of MCTD.. a mixture in my case of lupus, schleroderma, raynauds, polyarthritis, photosensitivity and hypothyroid..which I knew I already had!! Anyway the best advice is to check out the criteria list on this site and to start a daily diary recording your pains, in which part of you and to what degree...ie 1-10... note any skin changes and photograph any visible swelling, rashes etc etc and document it all. Do ask your GP for a referral now, he may want to take some bloods, particularly auto immune bloods, though they can be negative in a very small number of people who still have an auto immune disease. It might be helpful to find out if there is a Rheumatologist locally with auto immune experience and to very gently ask your gp if that may be a route to explore, but tread carefully, they like to have the solutions!! There is alot of advice on here for good Rheumy's etc. It may not be an auto immune problem but it would be good to take it to the next step so at least you are not left feeling helpless, which is soooo negative. Being a little bit in control of your destiny helps emotionally so do be quite assertive..though in a kind way!! You deserve good health care and at the moment you seem to be treading water... go get them girl XX
Claire
 

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hi Audrey

Im with Claire get your GP to get rheumy appointment ASAP

Yes it does sound like Lupus, well it sounds like I was with it.

try heat packs or ice packs they help along with painkillers

take care dixy
 

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Hi Audrie and :welcome:

Your symptoms certainly merit further investigation and could certainly be auto-immune in nature.

It sounds as if your GP is at least not "not trying" to help which is good.

Have you tried asking him if he thinks "it might not be something auto-immune" (don't actually say "lupus)? I would ask him to run an ANA blood test and also for a referral to a rheumatologist.

If you need recommendations for a good lupus-specialised rheumy there is a "find a doctor" section here on the boards.

bye for now,
Katharine
 

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Hi there,

Welcome to the board and ditto what Katharine said.

I would have asked you the same thing.

Hope you get answers soon.:wink2::wink2::wink2:
 

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audrey,
It is possible that you could have lupus but there are a number of other things it could be also. I would hope that your doctor is the kind of person that wants to see you getting along better than you have been. So here is what I think I might do. I would make an appointment and when he comes in tell him what is going on and ask him if it could be lupus. This might put him on the road to looking at lupus and the other things that it could be for you.

I am sorry that you are in so much pain and that things you should be able to enjoy seem to just make you feel worse. I can say with confidence that I know how that feels. It can cause overwhelming confusion and a roller coaster ride with your emotions. I wish I could tell you it will get better soon but until they find out what is going on with you this maybe life for now. Keep your thoughts positive and your hopes high in the mean time.
 

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Hi Audrie and :welcome: but sorry for what brings you here. That's some list of problems and you are way too young to have any of them. I would jot down everything that's been going on and approach your GP with it. I too would be inclined to ask if he thinks there is some kind of immune problem - autoimmune specifically. I WOULD NOT however ask him if he thinks it's Lupus - most docs would take that as you have read up on the symptoms and decided you have it :wink2: Not a good way to get a referral considering he hasn't seen most of this in action. Photos of rashes etc can be very helpful too, these diseases have a habit of going into hiding when we see the doc.

Good luck and if he's any sort of doc and considers your symptoms he will definitely do some bloods for starters.

Let us know how you get along.

love
Lily
 
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