Hi there,
It's hard reaching a diagnosis with something like Lupus and often takes time and some deliberation by specialists. It's not so much that your GP is wrong perhaps but if the Rheumy says maybe then it means he's not 100% sure :hehe: and doesnt have enough evidence right now. They are often more conservative in handing out a diagnosis especially with a lifelong illness that will affect insurance and lots of other things. So sometimes not having a firm label can be handy.
I guess the main thing you should be concerned about is your Rheumy treating your symptoms? All the connective tissue diseases are treated with similar drugs, so whether you have Lupus or another associated disease it should be treated. Are you on any meds?
love
Lily
It's hard reaching a diagnosis with something like Lupus and often takes time and some deliberation by specialists. It's not so much that your GP is wrong perhaps but if the Rheumy says maybe then it means he's not 100% sure :hehe: and doesnt have enough evidence right now. They are often more conservative in handing out a diagnosis especially with a lifelong illness that will affect insurance and lots of other things. So sometimes not having a firm label can be handy.
I guess the main thing you should be concerned about is your Rheumy treating your symptoms? All the connective tissue diseases are treated with similar drugs, so whether you have Lupus or another associated disease it should be treated. Are you on any meds?
love
Lily
