Joined
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9 Posts
Good Evening...
I'm new at this. I'm also frustrated, confused, exhausted & getting a bit short tempered. I was told I have lupus last August. I didn't think much of it because I had no idea what it was. All I knew, was that the horrendous pain I'd been living with for the past 4 to 5 years was going to finally subside to a degree that I could at least live with. The "body" pain would get so bad that I'd occasionally toy with the idea of suicide. Problem was, I'm a big chicken. I figured that if my luck with suicide was as good as my luck with marriage, I'd be in really big trouble! So, on many days, one minute at a time became a chant. This past September, I began taking meds designed to treat Lupus along with Prednisone. By November, I can't begin to tell you how thrilled I was to be virtually pain-free for the first time in almost 5 very long years. There's a lot more to this but I'd rather get to my question(s).
I'm rather frustrated because I can't find anyone who can really help me with symptoms. I don't mean the pain. I know about that! Does anyone out there (once you've been diagnosed) experience periodic sleeplessness, fatigue or just plain want to rip into someone just because!? I also think I'm going through a bit of depression. I just don't care about much anymore & I seem to fret about stupid stuff. The more I try to ignore it, the worse it seems to get & the next thing I know, in the hour or two of sleep I may be able to steal, the junk enters my dreams! I've even set up a CD player in my bedroom and play a relaxation CD all night...it's cool! Its rainforest sounds with subliminal relaxation messages. Anyway, I don't get it. I was thrilled when I was finally diagnosed. I know that sounds weird, but at least I knew what was wrong and there was a light at the end of a most painful tunnel. Could it possibly be the colder than usual winter? Are colder winters harder on us than for others? My joints feel like ice blocks & I swear I'm going to break a limb because they feel like icicles! To make matters worse, I bundle up or sit with my hot water bottle between my legs to warm up my blood then I'm too hot!! I don't remember any of this stuff before, but that's probably because the pain was always there.
Anyway, if anyone out there can help, I'd appreciate a word of advise or two. I'm open to anything but I'd prefer a suggestion that doesn't include another drug!
Thanks,
Sleepless Sue
I'm new at this. I'm also frustrated, confused, exhausted & getting a bit short tempered. I was told I have lupus last August. I didn't think much of it because I had no idea what it was. All I knew, was that the horrendous pain I'd been living with for the past 4 to 5 years was going to finally subside to a degree that I could at least live with. The "body" pain would get so bad that I'd occasionally toy with the idea of suicide. Problem was, I'm a big chicken. I figured that if my luck with suicide was as good as my luck with marriage, I'd be in really big trouble! So, on many days, one minute at a time became a chant. This past September, I began taking meds designed to treat Lupus along with Prednisone. By November, I can't begin to tell you how thrilled I was to be virtually pain-free for the first time in almost 5 very long years. There's a lot more to this but I'd rather get to my question(s).
I'm rather frustrated because I can't find anyone who can really help me with symptoms. I don't mean the pain. I know about that! Does anyone out there (once you've been diagnosed) experience periodic sleeplessness, fatigue or just plain want to rip into someone just because!? I also think I'm going through a bit of depression. I just don't care about much anymore & I seem to fret about stupid stuff. The more I try to ignore it, the worse it seems to get & the next thing I know, in the hour or two of sleep I may be able to steal, the junk enters my dreams! I've even set up a CD player in my bedroom and play a relaxation CD all night...it's cool! Its rainforest sounds with subliminal relaxation messages. Anyway, I don't get it. I was thrilled when I was finally diagnosed. I know that sounds weird, but at least I knew what was wrong and there was a light at the end of a most painful tunnel. Could it possibly be the colder than usual winter? Are colder winters harder on us than for others? My joints feel like ice blocks & I swear I'm going to break a limb because they feel like icicles! To make matters worse, I bundle up or sit with my hot water bottle between my legs to warm up my blood then I'm too hot!! I don't remember any of this stuff before, but that's probably because the pain was always there.
Anyway, if anyone out there can help, I'd appreciate a word of advise or two. I'm open to anything but I'd prefer a suggestion that doesn't include another drug!
Thanks,
Sleepless Sue