Joined
·
33 Posts
Now I know I must be crazy, I just rang the GP again on my last blood tests all normal..
After my visit to the rheumatologist he mentioned some more blood tests to my GP to try, peeking at the list one was CA125 and creatine I think, in his letter he said I had Livedo reticularis on my legs and a erythematous rash on my cheeks and forehead that looked more like rosacea. He says I had 3/5s weekness in all areas but could detect no localising neurological signs. He goes on to say the situation is far from clear and as Lupus was raised given the negative ANA result and the normality of other blood tests points against Lupus, possibilities here are quiet wide ranging.
My GP said is quite possible ME but he got the glandular fever and Lupus wrong. Perhaps I am imagining all the symptoms. I am worrying that my GP will think I am crazy if I mention any other symptom I dare not tell him I have had sores up my nose and a few mouth ulsers this week.
I have had very little sleep due to itching my scalp is so sore and I have an aching back so much so I feel like it sometimes wont hold me up especially my head. I still cant eat without my tummy swelling up like I am six months pregnant and spend most of my time on the toilet. I get a really horrible sensation when I urinate like a srong achey/burney sensation where my pubic bone is dont think it is infection as it doesnt happen everytime I go.
Sorry bout long post, really, really fed up, what will they do with me now have me commited!
Lisa xxxx
After my visit to the rheumatologist he mentioned some more blood tests to my GP to try, peeking at the list one was CA125 and creatine I think, in his letter he said I had Livedo reticularis on my legs and a erythematous rash on my cheeks and forehead that looked more like rosacea. He says I had 3/5s weekness in all areas but could detect no localising neurological signs. He goes on to say the situation is far from clear and as Lupus was raised given the negative ANA result and the normality of other blood tests points against Lupus, possibilities here are quiet wide ranging.
My GP said is quite possible ME but he got the glandular fever and Lupus wrong. Perhaps I am imagining all the symptoms. I am worrying that my GP will think I am crazy if I mention any other symptom I dare not tell him I have had sores up my nose and a few mouth ulsers this week.
I have had very little sleep due to itching my scalp is so sore and I have an aching back so much so I feel like it sometimes wont hold me up especially my head. I still cant eat without my tummy swelling up like I am six months pregnant and spend most of my time on the toilet. I get a really horrible sensation when I urinate like a srong achey/burney sensation where my pubic bone is dont think it is infection as it doesnt happen everytime I go.
Sorry bout long post, really, really fed up, what will they do with me now have me commited!
Lisa xxxx