Dear God, the mack truck just rolled over me...again

320 Views 10 Replies 9 Participants Last post by Bobby, Mar 11, 2009

Bobby

Discussion Starter · Feb 14, 2009

Here I am being flattened by that mack truck again.

Just got home from the hospital after having a lumpectomy on my right breast with what I'm being told is likely to be a phyllodes tumor. Never heard of it before and another week to worry before I know if its benign, borderline or malignant.

Also after years of dx with Lupus now told it's UCTD

I am so low at the moment can't seem to muster my usual 'get a grip on it' self.

I'm sick and tired of feeling sick and tired. This low phase is way too long and all I want to do is sit in the sun and have a brandy.

Sorry for the moan, I'm just sooooooooo tired and soooooooooo low.

Bobby

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lazylegs

· #2 · Feb 14, 2009

Hi Bobby,

I am sorry you are feeling so awful right now. It isn't a wonder since you are dealing with such a stressful situation. I would most likely be a basket case if I were in your shoes. I will keep my fingers crossed for a benign tumor.

We just had another member have their diagnosis changed to UCTD also. You might want to read the thread. Clare offered some good insight on the second page.

http://www.thelupussite.com/forum/showthread.php?t=73019&highlight=uctd

Take care,
Lazylegs

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peonyprincess

· #3 · Feb 14, 2009

Dear Bobby,

I HATE it when someone gets ran down. Did you get a plate number?? I think the truck that got you got me three weeks ago. Ughhhhhhhh!

Sending you some road rash cream and hoping that you get back to "normal" as soon as possible.

Nancy

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LolaLola

· #4 · Feb 14, 2009

Hello Bobby, Ugh, I feel for you. Please let us know re. your tumour as soon as you can.
Maybe a small brandy but no sun would be a good compromise?
x Lola

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greenhaggis

· #5 · Feb 14, 2009

Bobby,

Sending lots of hugs:hug: your way and hope the tumor is benign.

What ever happens let us know so we can support you through it!

I'm the one that recently had diagnoses changed

I wonder if we had the same doctor! Hope youre still be treated with same meds!

Take lots of care of yourself!

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cad

· #6 · Feb 14, 2009

Hi Bobby,
I am so sorry for everything you've had going on, I'm not surprised that you feel flattened!! You poor thing :hug:

I really hope the test resukts go the best waty they possible can for you and wish you all the best of luck with feeling better soon.

Take good Care

Cassie

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onetay

· #7 · Feb 14, 2009

Bobby,
I am sorry that you are having to deal with all these problems right now all at once. I am sure that part of your feeling bad is your body trying to handle the healing after surgery. Then on top of that, the surgery has most likely flared up the sle. Get a little extra rest and give it some more time and see if you don't find your old self along the way. It is hard to be cheery with all that has been going on with you. If it continues you might want to talk to your doctor and see if they have any advice for some meds to help you thru this time. We are here if you just need to chat to someone, it is never a bad time. I hope you feel better soon.

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Bobby

Discussion Starter · #8 · Mar 9, 2009

Thanks everyone for your kind thoughts. :foryou::foryou:Sorry I haven't been on lately, I hate being in this down state and dumping on anyone. Guess we've all got our own mack trucks.

My tumor was benign,

.

Just when I thought I was out of the woods, the mack truck reversed over me. Now I have a problem with my spine, what on earth is seronegative arthropathy, and lateral disc protusion at L4-5 touching the nerve, which explains my new sexy hobgoblin walk.

Add to that the new desire to remove my spleen and the low white cell count (0.5) and I'm pretty sure the person driving the mack truck is having waaaay too much fun at my expense.

Even worse, the cable has just one down so no Star Tek deep space nine for me. Can it get any worse?

I'm off tomorrow to see about having my bladder pinned as it's overactive. Geez I wish the rest of me was. The only other thing overactive is the excessive hair I'm growing all over my body except, where it should grow...on my head. I haven't had a good nights slep in ages, usually two hours . and I'm crying all the time, what's up with that. I don't do tears, not for myself anyway.

I really could do with a hug from my mum, I miss her so much.

That sounds really pathetic, I'm nearly 50. I wish I could get a grip.

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pollianna

· #9 · Mar 10, 2009

Bobby, firstly Phew!!! So good to scrol down and see your tumour was benign.

I have seen D D'Cruz at St Tommys and have a diagnosis of UCTD also. Unlike the other person I am on Plenequel.

have also been run over with the mad truck and hair issues We appear to be CTD twins :lol:

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x_claire_x

· #10 · Mar 10, 2009

Sooo pleased it was benign, I am sure you are tearful at the moment, what a terrible time you have been having. If you are really blue and it lingers, go talk to somebody... I bet you are a gorgeous hobgoblin!!! I wish you all the best with the other probs, they always seem to come together.. bit like that truck! Take care and I will send you a hug..

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Bobby

Discussion Starter · #11 · Mar 11, 2009

Hi my Luppy family,:grouphug2:

I can't tell you how much you have made my day. Nothing much has changed, I spent the day at hospital and would you belive someone has lost half my records...oh well! One of my extremeley stupid cousins managed to get ink all inside my laptop and it's now acting with it's own mind....sticky keys to go with sticky blood :lol:. (very poor luppy humour) No guesses for which nitwit will not be touching my laptop till ET returns holding a potted violet.

Anyway, I'm still kinda blue only now it's sky blue as oppose to very dark blue, so I'm getting there. Thanks most certainly to all of you, it helps to know I'm not alone, and your dry wit, peonyprincess, helps to keep me focused.

Next time I see that mack truck, I'm letting his tyres down and tying some tin cans to him so you can all hear it coming.

For now, I'm putting some things in my SFTCTD bag (Something For The Creator To Do) and I'm finally going to do as the physio says and start using the crutches and go for walks in the evening.

I hope you are all having a pain free week and that it stretches on and on ..and on

Take carexxx

:grouphug2::flower2::flower2:

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