Hi there a bit nervous but here goes i am the wife of mark who has lupus diagnosed 1 year to date and although he says he dosent want to talk to strangers about his condition i need help with this. mark has polymyosits lupus and spent 5 weeks in intensive care this time last year as he got legionella pnuemonia it has been **** and he really should not still be here with all the complications he had but hes a strong 45year old man with guts and determination. we are happier and stronger than ever and laugh more now than ever but i just could do with alittle help with the day to day stuff that lupus throws our way. mark hasnt worked for 2 years now and may not work again as you can imagine that brings its own minefield as he used to work all over the world and is used to a busier life. im sure he would benefit from another mans perspective as i think he feels if he gets into conversations about lupus it will all be from a womans point! oh i think i am waffling so i will end this introduction and hope someone can help! thank you for reading this debbie x