[purplesnowflake]

Hello. My legs have decided to work and I start mepacrine tomorrow so things looking up.
Just quick question really, next week I'm due to see dermy about rash but it is all gone. I have photos but they are not the clearest. Will a demy help even if my skin is behaving at the time of the appointment? GP says to cancel but I know rash will be back and then by time I get refered again it will have time to fade again. Not 100% sure what to do. Does nt help that I hate going to drs.
The rashes I have periodically are:
bright red cheeks - most of time
circular red rash on arm similar to ring worm but cleared up on plaquenil - comes back in sun
bumps on fingers near joints that over time go purple and sore
purple splodges under skin on fingertips and toes.
It was the purple ones GP was concerned about.
Hope you all had good weekend.

 

[ElephantEyes]

Hi -

I don't know if I can offer any help to you - I was in a similar situation recently and my rhuemy cancelled a dermy consult while I was in hospital because my rash was improving. Three weeks later, the rash came back with a vengeance. I rang the dermy and got put on a cancellation list and got in within two weeks.

I have gone to see a dermy before when my skin was fine and I found that they couldn't do a lot for me - I'm no expert though.

I'm not sure how helpful I'm being - but I guess I'm curious to see what others say too

Nellie

 

[Lily]

Hi,

Glad your legs are behaving and you will be starting the Mepacrine :hug:

Just my opinion but I'd be inclined to keep the appt and speak directly with the Dermy and ask if it will be possible to fit you in at short notice when your rashes reappear. If they already have a history on you then just having a quick look one day to piece it altogether shouldn't be too much of a problem if they are interested in helping you.

love
Lily

 

[dixy]

Hi

keep your appointment they can still do specialised bloods to check,take u pics with u also

dixy

 

[Katharine]

Hi there,

It is frustrating with such things isn't it

I'd be inclined to keep the appointment and do as Lily suggested asking if you can contact them to be fitted in for them to look quickly at those rashes when they're there.

Hopefully they will clear up with mepacrine.

Katharine

 

[star70]

Hello

I saw my dermatologist a couple of weeks ago. My rash was only in a mild flare and nothing compared to how it usually is, but I was armed with my photos. He said that it helped a great deal and to keep taking them showing the different stages. I have to say I am not sure if he was humouring me or not?

I wouldn’t cancel the appointment as we all know how long it can take to get the appointment in the first place. I think you have to play it by ear with consultants, so take your pictures and go from there.

Sorry I can’t be more helpful.

Regards

Star

 

[onetay]

I would take the pictures and keep the appointment. I often seen the dermy after it was all over and he was the one that found my lupus when one else even had a clue. Make sure that you tell him that the pictures are not the best but that you are sure that it will happen again.

I do hope that this helps you with deciding to go or cancel that appointment. I hope you are feeling well and doing well.

 

[purplesnowflake]

Thank you and the rash is back.

Thank you for your replies. It has helped me to decide that I will keep appointment with dermy armed with my photos.
Due to the nice weather - I assume anyway - the rash is back. It is n't purple yet but it starting out the same as before. The circular rash on my arm has also reappeared and cheeks are glowing.
At least I wo nt be thinking I'm wasting the dermy's time...
I'll let you know how I get on.
Thanks again.
Hope you are all doing ok.

 

[KarolH]

Good luck at your appointment and let us know how you make out.

Be sure to ask the doctor if you can be seen on short notice in the future when these rashes decide to rear their ugly heads.

Keep us posted purplesnowflake.:wink2::wink2:

 

[keebler]

Hi Purplesnowflake,

I am so happy that you still have your dermy appointment.

Great that your rash has come back. That sounds funny being happy that your rash is back.

I want to wish you good luck at your appointment and let us know how it goes.

Love,
Lyn

 

[purplesnowflake]

Been to dermy

I went to see the dermy today. My rash has gone with the sunshine but I took my photos but my printer was n't working so well so not all that clear. But he was nice and looked at my hands. He said my nails have dilated blood vessels under them? which was indicative of connective tissue disease. He also commented on my hands and feet being so blue. He has given me a phone number for his receptionist and organised an open appointment so I can phone when my rash is back and see him asap. Only problem he's only there on a Thurs.But hopefully, it'll be ok.
I'm glad I listened to you all and not GP on this one so thank you.

Hope you all OK.

 

[greenhaggis]

Hi there,

Your appointment sounds like it went reasonably well!

Make sure you get those photos printed up in better quality...perhaps in a store! Also take more pictures as and when rashes appear and always in duplicate (1 copy you keep and the other you give away to specialist to keep in files)!

Did you have any bloods taken at this appt? Regardless of the emergency appointment, do you know when you will need a routine follow-up appointment?