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286 Posts
Hi,
Something has been bugging me for the last few days and hoping writing about it may make me feel better.
I know I am splitting some diagnostic hairs here, but I feel like I just got diagnosed all over again for the first time...and in a bit of shock.
I have always been told by doctors that I had lupus, but it was contained to the skin and joints with some occasional muscle problems. I made it a point to say to others.. it is not systemic, no organ involvement. I just called it LUPUS.
I saw a new rheumy on Monday, and watched him write SLE in my chart as a diagnosis. When I questioned it, he told me I do, in fact have systemic lupus, based on my family history, past and present medical history and examination.
This came as a bit of a shock to me, and I feel like I just got diagnosed for the first time. It seems silly I know, even to be writing it but I feel like Im in a panic.
I have learned through the past few years that it really does not matter what you call it..as long as you can get treatment and feel better. But seeing those three little letters in black and white on my chart has really scared me and depressed me. I feel like an idiot for feeling this way!
Something has been bugging me for the last few days and hoping writing about it may make me feel better.
I know I am splitting some diagnostic hairs here, but I feel like I just got diagnosed all over again for the first time...and in a bit of shock.
I have always been told by doctors that I had lupus, but it was contained to the skin and joints with some occasional muscle problems. I made it a point to say to others.. it is not systemic, no organ involvement. I just called it LUPUS.
I saw a new rheumy on Monday, and watched him write SLE in my chart as a diagnosis. When I questioned it, he told me I do, in fact have systemic lupus, based on my family history, past and present medical history and examination.
This came as a bit of a shock to me, and I feel like I just got diagnosed for the first time. It seems silly I know, even to be writing it but I feel like Im in a panic.
I have learned through the past few years that it really does not matter what you call it..as long as you can get treatment and feel better. But seeing those three little letters in black and white on my chart has really scared me and depressed me. I feel like an idiot for feeling this way!