Hi everyone
you probably don't remember me because I haven't posted anything for ages - that's because everyone was being so cautious with a diagnosis that I truly believed I didn't have lupus - however this week it was diagnosed along with fibromalgia (or however you spell it) It was quite funny - the rheumy had to say it 3 times - I was so sure it wasn't lupus. Anyway he said it was down to the anti ds dna postive test that swung it (although I was led to believe that it was only borderline positive - but he showed me the paper and there it was in black and white - positive. So that's that - the good news is that I'm off the steroids - after two years hurrah - altohugh I did have to have a steroid injection in the butt ... so its plaquinil for me and thats all! so here I am a fully paid up member of the loopie gang
hello!!
you probably don't remember me because I haven't posted anything for ages - that's because everyone was being so cautious with a diagnosis that I truly believed I didn't have lupus - however this week it was diagnosed along with fibromalgia (or however you spell it) It was quite funny - the rheumy had to say it 3 times - I was so sure it wasn't lupus. Anyway he said it was down to the anti ds dna postive test that swung it (although I was led to believe that it was only borderline positive - but he showed me the paper and there it was in black and white - positive. So that's that - the good news is that I'm off the steroids - after two years hurrah - altohugh I did have to have a steroid injection in the butt ... so its plaquinil for me and thats all! so here I am a fully paid up member of the loopie gang