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6 Posts
:sad:
Hi, everyone. I was diagnosed with lupus last month and I think it's just finally starting to sink in that I'm sick. I mean, I know I've been sick for years, but to be diagnosed with something as serious as lupus is really freaking me out. My PCP (Primary Care Physician) is wonderful, and he was going to send me to the Mayo Clinic, but when my ANA came back positive, he sent me to a rheumatologist. Two months later, I went to see the rheumy and before ordering blood tests, he told me that he didn't think I had lupus because I had no organ involvement. He did, however, order a full lupus workup because of my symptoms (sun sensitivity, joint and muscle pain, hair loss, etc, etc) and because of the fact that my sister had lupus. I left the rheumy's office thinking that lupus had basically been ruled out.
Before I returned to the rheumy for the test results and dreaded diagnosis, I went to see an allergist who told me that I'm allergic to onions, strawberries, and the list goes on and that my allergies could be causing rheumatological symptoms. This is why I was SO SURE that I didn't have lupus! The allergist started injections, but I started having reactions to them and had to stop. In the meantime, I went back to the rheumy and he told me I had lupus and put me on Plaquenil and Mobic.
I have been having a really hard time and only just recently started taking the Plaquenil. I just need some advice on how to cope and how to enjoy spring and summer with my two boys without getting sick from the sun. We love biking, amusement parks, picnics, etc. I break out in horribly itchy rashes from the sun and I get really fatigued and nausea. I can't stay home between 10 - 4 either, because I have to pick up my son from school and do other important things. What do I have to do, become a recluse? :worried: Gosh, I'm so depressed....
Stacy
Hi, everyone. I was diagnosed with lupus last month and I think it's just finally starting to sink in that I'm sick. I mean, I know I've been sick for years, but to be diagnosed with something as serious as lupus is really freaking me out. My PCP (Primary Care Physician) is wonderful, and he was going to send me to the Mayo Clinic, but when my ANA came back positive, he sent me to a rheumatologist. Two months later, I went to see the rheumy and before ordering blood tests, he told me that he didn't think I had lupus because I had no organ involvement. He did, however, order a full lupus workup because of my symptoms (sun sensitivity, joint and muscle pain, hair loss, etc, etc) and because of the fact that my sister had lupus. I left the rheumy's office thinking that lupus had basically been ruled out.
Before I returned to the rheumy for the test results and dreaded diagnosis, I went to see an allergist who told me that I'm allergic to onions, strawberries, and the list goes on and that my allergies could be causing rheumatological symptoms. This is why I was SO SURE that I didn't have lupus! The allergist started injections, but I started having reactions to them and had to stop. In the meantime, I went back to the rheumy and he told me I had lupus and put me on Plaquenil and Mobic.
I have been having a really hard time and only just recently started taking the Plaquenil. I just need some advice on how to cope and how to enjoy spring and summer with my two boys without getting sick from the sun. We love biking, amusement parks, picnics, etc. I break out in horribly itchy rashes from the sun and I get really fatigued and nausea. I can't stay home between 10 - 4 either, because I have to pick up my son from school and do other important things. What do I have to do, become a recluse? :worried: Gosh, I'm so depressed....
Stacy