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394 Views 5 Replies 5 Participants Last post by  BigSis
hi, i have just been diagnosed with lupus and am in a state of shock. don't know much about the condition and got no help from my gp. waiting for hospital appt. gp said look it up on the internet!!! can anyone help?:(:(
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Hi Sandra

Welcome to the Forum. Im sorry about your news but please dont panic. There are good treatments out there and lots of helpful advice and support on these message boards.

Who diagnosed you? Have you been to a specialist? Its usually a Rheumatologist who diagnoses people with Lupus. If it was your GP who told you, please remember that it is a rare GP that fully understands this condition and it can take a lot of detective work to be diagnosed with Lupus. Sometimes there are other explanations for our symptoms as Lupus can mimic many other diseases.

Do you know what blood tests were carried out? You mentioned that you have a history of miscarriages. There is a condition called Antiphosphilipid Syndrome (also called Hughes Syndrome) which is associated with miscarriages and one of the blood tests for this condition is called the Lupus anticoagulant. I wonder was this blood test carried out and if so was it positive? Its actually badly named because it has nothing to do with Lupus itself although the condition can present as a secondary condition to Lupus. It can also be a primary condition in and of itself with no other evidence of Lupus. Here is a link which you might find helpful. Have a look and see if any of the symptoms ring any bells.

When do you have your hospital appointment? Im sure it can't come around quick enough for you. If you need any help or advice for that appointment please ask.

In the meantime welcome again and we will do all we can to help and guide you.

Take good care
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