Hello All,
I have a question about breathing!
Before starting treatment I frequently had episodes where I had enormous difficulty in getting "enough" air.
In general, I have a slight feeling of oppression in my chest but nothing serious on stethoscope examination. X-rays have shown a "spot" of bronchitis (which is very odd as I haven't had bronchitis since I was pregnant with my youngest in 2000). MY GP obviously doesn't consider this "spot" serious (and he is a good GP
).
So, in short, examinations showed nothing serious.
The problem is that I am not doing so good on my last pred reduction. At first I just thought it was a patch and that things would blow over but I have been feeling gradually stiffer and sorer as well, of course, as tireder.
Now, added to that a couple of weeks back I started having the odd day where I felt I couldn't breathe. It is an awful feeling, really like you can't get air - you try and yawn to get air that way but it doesn't always work and it's actually quite frightening. In a mad attempt to get air, you then even get the reflex to want to be sick coming in somewhere. I'm being weird here, hope you can follow :hehe:
These attacks last a long time, sometimes a whole day, and are getting more frequent. Today it got so bad that as I was sitting trying to talk to my son's headmaster, I started shaking with it and feeling a little dizzy.
I don't know if anyone has experienced anything similar. I was thinking of calling my rheumy on Thursday (I know she's in the office then) as I am SUPPOSED to reduce my pred again next month. It seems that it might not be the best idea (I think some of these difficulties can come from myositis rather than lupus) and indeed think I may well need to go back up.
This happeneing has no link to being stressed. It just happens.
thanks for your insight,
Katharine
I have a question about breathing!
Before starting treatment I frequently had episodes where I had enormous difficulty in getting "enough" air.
In general, I have a slight feeling of oppression in my chest but nothing serious on stethoscope examination. X-rays have shown a "spot" of bronchitis (which is very odd as I haven't had bronchitis since I was pregnant with my youngest in 2000). MY GP obviously doesn't consider this "spot" serious (and he is a good GP
So, in short, examinations showed nothing serious.
The problem is that I am not doing so good on my last pred reduction. At first I just thought it was a patch and that things would blow over but I have been feeling gradually stiffer and sorer as well, of course, as tireder.
Now, added to that a couple of weeks back I started having the odd day where I felt I couldn't breathe. It is an awful feeling, really like you can't get air - you try and yawn to get air that way but it doesn't always work and it's actually quite frightening. In a mad attempt to get air, you then even get the reflex to want to be sick coming in somewhere. I'm being weird here, hope you can follow :hehe:
These attacks last a long time, sometimes a whole day, and are getting more frequent. Today it got so bad that as I was sitting trying to talk to my son's headmaster, I started shaking with it and feeling a little dizzy.
I don't know if anyone has experienced anything similar. I was thinking of calling my rheumy on Thursday (I know she's in the office then) as I am SUPPOSED to reduce my pred again next month. It seems that it might not be the best idea (I think some of these difficulties can come from myositis rather than lupus) and indeed think I may well need to go back up.
This happeneing has no link to being stressed. It just happens.
thanks for your insight,
Katharine