I saw my rheumatologist this morning. I was a bit discouraged when I left. I think it's because I was hoping for some help and encouragment and I didn't get either. My biggest problem right now is trying to get a restful nights sleep. Every night I wake up between 3am and 4am in quite a bit of pain. My hips are killing me ,I have a headache,a sore throat (?? )and my lungs ache. I toss and turn for at least an hour ,sometimes longer and if I do go back to sleep it's in fits and starts till I get up at 7am. Right now I'm on plaquenil and Advil. I have the Advil by my bed and take it as soon as I wake up ,but it doesn't really help much. I was hoping she would give me something a little stronger to help relax me enough to get back to sleep. She refused and told me instead to get up ,don't turn on any lights ,and stand around till i got bored ,then try again. Then she says that on top of the lupus I have fibromyalgia. So I guess I'm feeling a bit discouraged right now. I don't see her again for a year.Shes' the only rheumatologist around ,and she's an hour away. The next one would be 3hours away,so it's hard to get a second opinion. So what do you think? Do I just have to suck it up and live with sleepness nights? Right now I feel like I don't have a choice since she's the only game in town so to speak.So I am going to try it her way for now.
thanks for listening..... Kate
thanks for listening..... Kate