The Lupus Forum banner

Discoid lupus

530 Views 9 Replies 5 Participants Last post by  rainbowmum
Hi - Im sure I posted somewhere on this site before and cant find it now:)

I was diagnosed with Discoid Lupus 3 weeks ago and am waiting on a referal appointment with a dermotologist.
My bloods came back that I dont have Systematic Lupus but when I reminded my gp of my symptoms of depression,pain and swollen jints she said she would put it in my dermotologist referal notes.

I now have an appointment with a locum gp again - she was great :) she was the one who arranged the biopsy after 12 years of itching sores on my chest and the other symptoms.
(In the 12 years I have tried steroid creams,antibiotics and told my rash was stress related etc - so it is now a certain relief to be pointed in the right direction :)
When I go back to the locum gp on Friday, I hope she also pays the same attentiion to my other symptoms as she did to the biopsy arrangements.

Could anyone advise me what the dermotologist might do in relation to the pain and extreme fatigue or should I push these symptoms with the gp appointment on Friday
Any advice would be greatly appreciated
Thanks x
1 - 2 of 10 Posts
Hello Rainbowmum :)

I am glad you have got some answer at last ! Many docs are far too slow to refer on when skin trouble doesn't clear up. Thank goodness for the locum taking some initiative.

Here are your previous posts. Anybody's previous posts can be found by clicking on their name in blue to the left of their posts or right up at the top right where it says Welcome followed by your name :)

Link to yours

I gather that you haven't already seen a dermatologist? If you have longstanding lupus skin problems you should be prescribed an antimalarial.
The one most often used is called hydroxychloroquine sulfate, known as Plaquenil. This is the first oral medicine for SLE and used as a base medicine even when others need to be added. It is especially good for skin, joints and fatigue but has important general disease modifying properties, slowing down activity and reducing flares.

It's hard to say whether a dermatologist might want to refer on to a rheumatologist when it is clear there are other likely lupus symptoms even if blood work is negative.

It would be a good idea to find out what tests have been done. Usually a GP would only do complete blood count and and ANA, & maybe a rheumatoid factor, RF. Ideally other lupus related tests should be done even if the ANA is negative. There's one antibody called anti- Ro that is often found in ANA negative lupus and is often associated with one of the sorts of lupus skin called subacutecutaneous, which in turn is most often on chest, back and arms. " Discoid " is sometimes used as a generic term for lupus specific skin that is not the malar rash that's associated with SCLE. You could have a look at the pictures links that are in the sticky post at the top of Symptoms section of the forum called "Lupus and the Skin".
I certainly think you should mention the fatigue and joint pains again to the locum and make sure it;s down in your notes. I don't know if she will consider you ought to see a rheumy or refer you for some imaging of the joints to see if there's any damage, if she is able to do that

She might give you some NSAIDs to help with the joint aches. Sometimes a short course of Prednisone is prescribed to help bring down general inflammation but each doctor has their own way of doing things.

Let us know how you get on please.

Good Luck!
See less See more
Hello Polliana

Can you give some reliable references for the use of Retin A in skin lupus?
I have never heard of this or had it suggested to me, although I have seen some top specialists, in fact I was told by one of the dermatologists who developed it that it had no use in skin lupus but that was many years ago.
It is pretty strong stuff and a medicament not a cosmetic. It also increases photosensitivity.

There are a number of creams or lotions available OTC that are supposed to reduce scarring that probably can do no harm although I believe they work best when the scarring is recent. Anyway I wouldn't use any medicinal product without medical advice unless it can be used without concern on a baby's skin.

1 - 2 of 10 Posts
This is an older thread, you may not receive a response, and could be reviving an old thread. Please consider creating a new thread.