Joined
·
63 Posts
...................... [ Edited :The first two links aren't working any more so I have deleted them. CT]
Also this site with info on people with ME may be relevant to those who have extreem fatigue http://ayme.org.uk/article.php?sid=16&id=216
Good luck to anyone making a claim, I know it seems depressing to say all the things you can't do/ how bad lupus can be (particularly for those who like to stay positive about their health condition) but remember to tell them what it's like when you are at your worst, and when describing variations from day to day use the phrase "on my better days" rather than "on good days" or they assume you are fine on "good days".
Also this site with info on people with ME may be relevant to those who have extreem fatigue http://ayme.org.uk/article.php?sid=16&id=216
Good luck to anyone making a claim, I know it seems depressing to say all the things you can't do/ how bad lupus can be (particularly for those who like to stay positive about their health condition) but remember to tell them what it's like when you are at your worst, and when describing variations from day to day use the phrase "on my better days" rather than "on good days" or they assume you are fine on "good days".