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Nettyunicorn
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Discussion Starter #1
Hi its me again feeling as frustrated as ever. I think some of you may remember that recently i underwent nerve conductivity tests coz of pain, swelling and numbness in my hands. Well the specialist at the time said dr had refered me suspecting carpal tunnel or something similar. Well test results were all clear.
Now i have recieved result from dr/rheumy that refered me and suggests splints and possible injections, ok thats good if it was not for the fact that we have already been down that road with no effect, well splints do help a bit but are cumbersome. What i dont get is surely he knows we have done this all before so why suggest it again? Yes frustrated is not really the word for it.

While i'm here other symptoms has cropped up too. I have had recurrant pitting edema of the lower legs for a while, this has got worse and now have pain. This is mostly on my right side of body and i have started to get bruises appearing on my inner arms and on legs. fatigue has increased again to the point where if i could i would just continually sleep! None of my medical proffessional seem to listen to what i have to say so dont know what to do!

Netty from sunny devonxxx
 

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The first line of treatment for Carpal Tunnel is usually injections and splints and maybe a second lot of injections but after that surgery.. I was told when I had mine done that usually if first injections not worked then no point having more.... but it seems they don't think you have Carpal Tunnel now?? Am I understanding that correctly. Have they checked your circulatory system, including pulses in your feet etc? I hope so, cos it needs to be ruled out. I am not sure what else other than the nerve tests have been done. Do you give them a list of symptoms when you go to keep on file? Sometimes it is later when they are reading the info that a new idea occurs.....sorry I can't help much.. wish you well though,
Claire X
 

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It sounds like you have synovitis, inflammation of the synovium that surrounds the tendons in your wrist. It can cause carpal tunnel syndrome as well as other problems and the treatment recommended by your doctor is correct. If that and NSAIDS fail, then surgery is the only other option.

Synovitis is a symptom of autoimmune disease (lupus as well as others) Synovitis as well as your other symptoms warrant investigation into autoimmune disease. I don't remember your story so I don't know whether or not you've ever been tested for antinuclear antibodies or other antibodies. If not, demand you be tested (or retested) I had problems with synovitis for 23 years but didn't learn about its significance until after I read my doctor's notes this year, after things got real bad and I lost employment and after my GP and rheumatologist tested me receiving a moderately high positive outcome twice. My GP tested me approximately 18 years ago but the ANA test was negative then and no one tested me again until October 2008.

Best wishes,
Barb
 

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Nettyunicorn
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133 Posts
Discussion Starter #4
thank you for your replies! i have been told i do have something autoimmune going on but no definate dx as yet. i get lupus like or heading towards lupus but thats as far as they go!
my ana was checked a good few years back and it was a very low positive. i do have high inflammation and think that maybe the cause of alot of my pain and other symptoms!

i dont suppose you could go into more detail why i should be checking pulses?

thanks again

nettyxxx
 

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Hi Netty, it is just a standard check to ensure you are getting good blood supply to your peripherys... just wondered if all that was flowing well that was all... hope you get some answers soon, generally swollen legs can be worse on the right side particularly if circulation is sluggish... think you should keep tackling them on all the issues, particularly if they are new to you. Pitting oedema is not helpful ! Hope everything settles down soon and if not....back to the Drs.:(
Take care,
Claire X
 

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The Other Illinois Tammy
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1,193 Posts
Netty,
The swelling can be taken care of by your general doctor and some fluid pills. It is possible that he read the notes and thought it was something worth a try again as you did say that the splits did help some even if they are uncomfortable to work with. You might ask that the next visit why he is going down this road again as it did not help very much before? You can never know until you ask the question. You might be able to add something that he don't remember or have in the chart that will save time and energy by asking that one question. I hope that You start to feel better soon.
 

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Hi Netty,

Sometimes I don't think they read their notes. Going from patient to patient and being rushed.

That is why we need to know what is going on. If one of my relatives hadn't spoken up they would of had a test done again that they already did the month before.

I hope you get your pitting edema checked out as soon as possible. You never know what is going on. I had a lecture from my rhumey and cardiologist that kind of thing needs to get checked out asap.

I hope you get the relief you need.

Love,
Lyn
 

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Nettyunicorn
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133 Posts
Discussion Starter #8
hi all thank for reply, went to dr. seems bp really high 197/127 so new meds given see how they go!

feeling bit yuck

all take care

netty!
 
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