hello all.
i seen my doc today,and i asked him out straight what he thought is going on with me,he said that he was sorry but couldnt offer any explanation other than it being cfs/me.
he said they are completely stumped what to do next other than send me to a dermy about my skin probs.
he asked me what i thought should be done next,i said i didnt know neither,only that i felt quite disturbed to think i might have to live the rest of my life like i am,surely considering i have been like this for 18yrs the most i could expect is to be improving not deteriorating,he couldnt give an explanation other than his apologies that he doesnt know whats wrong with me,he really wants to get to the bottom of it to help and raise my quality of life.
he feels i do not need a repeat test for lupus as i only had one done 18 months ago,i did not make much of that remark,only a thought to myself that bloodwork change constantly,but he did add that all the bloods fo lupus has come back neg and that if something like that was going on it would of prove other.
he looked at the inside of my mouth as the upper lip is discoloured almost like a long thin line a bruised color,he dont think it is much to worry about but will keep an eye on it to see if it improves or dissapears,he asked if i drank red wine,which i dont drink any alcohol as i am very allergic to the stuff,although at times i wish i wasnt,i could do with being able to go blow my mind out from the pain at times.
i am glad i am going to see the dermy,when he told me this you would of thought somebody has just given me a thousands pounds,hopefully i will get some end to my skin probs,that would be priceless,and maybe some answers as i also have hardened skin on my thumb not much but it has got a lot larger in that area,so fingers crossed.
so i really hope i might start to get some answers,although i probably wont as i havnt in 18yrs,so maybe that is what i have is cfs/m.e.it sucks,but worst of all they just cant really help you with it.
sorry i felt i needed to rant a bit,my skin is driving me insane,if they can help with that prob i am sure i would feel so much better overall,anyway we will see.
love and best wishes jo8
i seen my doc today,and i asked him out straight what he thought is going on with me,he said that he was sorry but couldnt offer any explanation other than it being cfs/me.
he said they are completely stumped what to do next other than send me to a dermy about my skin probs.
he asked me what i thought should be done next,i said i didnt know neither,only that i felt quite disturbed to think i might have to live the rest of my life like i am,surely considering i have been like this for 18yrs the most i could expect is to be improving not deteriorating,he couldnt give an explanation other than his apologies that he doesnt know whats wrong with me,he really wants to get to the bottom of it to help and raise my quality of life.
he feels i do not need a repeat test for lupus as i only had one done 18 months ago,i did not make much of that remark,only a thought to myself that bloodwork change constantly,but he did add that all the bloods fo lupus has come back neg and that if something like that was going on it would of prove other.
he looked at the inside of my mouth as the upper lip is discoloured almost like a long thin line a bruised color,he dont think it is much to worry about but will keep an eye on it to see if it improves or dissapears,he asked if i drank red wine,which i dont drink any alcohol as i am very allergic to the stuff,although at times i wish i wasnt,i could do with being able to go blow my mind out from the pain at times.
i am glad i am going to see the dermy,when he told me this you would of thought somebody has just given me a thousands pounds,hopefully i will get some end to my skin probs,that would be priceless,and maybe some answers as i also have hardened skin on my thumb not much but it has got a lot larger in that area,so fingers crossed.
so i really hope i might start to get some answers,although i probably wont as i havnt in 18yrs,so maybe that is what i have is cfs/m.e.it sucks,but worst of all they just cant really help you with it.
sorry i felt i needed to rant a bit,my skin is driving me insane,if they can help with that prob i am sure i would feel so much better overall,anyway we will see.
love and best wishes jo8