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Fire Goddess
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Discussion Starter #1
I am having what can best be described as full body RLS.I do have RLS but I was just wondering if any of u have this same thing.I also have seziures but that is not what is happening when I get the full body stuff.It almost feels like I have the **** geebs all over my body.It is the worse feeling in the world.It causes me to have muscle spasms in all of my muscles which tends to hurt like ****.It is extreamly hard to describe to others.It happened last night when my b/f was staying here & it really freaked him out & also made him feel helpless because there was nothing that he could do for me.

Do any of u have seziures?? Just wondering.Thx for ur input.
 

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Hi and welcome to the board.

I have RLS in my legs and there are days that my muscles seem hyper and never relax. The feeling of ants crawling on my skin is common too.

I do not get seizures though so I am not sure what this is with you. You should mention it to your doctor.

Let us know how you make out moving ahead.:wink2:
 

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Hi Blackhawk,

Surely this is to do with your low calcium blood levels? They are classic symptoms I'm afraid.

I still think you need to see an Endocrinologist, you should push for this.

love
Lily
 

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Fire Goddess
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9 Posts
Discussion Starter #4
Yeah it is a very strange thing and very hard to explain because it happened the other night & he wanted to know what was wrong & I couldn't give him an exact explination on what was happening.Strange I know.I'm quite sure that it has to do w/the endocrine problems that I have but was just wondering if any of u have anything like it happening to u.I will be seeing my heart doc tomorrow about the surgery & I'm going to ask him to send me to see the head of the endocrinology dept.He is on of my brothers attendings & he wants me to see him.I'll be seeing my primary doc later this month & I'm planning on us having a nice sit down chat about how things are going to work between us or I'm going to find someone else.I'm not putting up w/his **** any longer.I have had it w/him not listening to me.He's got to learn that things are going to start going my way not his.When he understands that things will work fine between us.
Thx
 

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Good luck with your up coming appointment and let us know how you get along.

I had to laugh when you said "When he understands that things will work fine between us".

Things really do work better when the doctor and patient are on the same page.

I am one to challenge doctors all of the time, especially if I do not agree with what they are saying. We have to be on top of the game with our own health issues.
 
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