[Meriel]

Hi

I have a quick question.

I live in the UK and was only diagnosed with lupus this summer. I've just got back from a week long trip to Russia and it was really cold and wet. I noticed my joint and muscle aches got much worse. Is this normal? It is getting cold in the UK now but I hadn't noticed this link before.

Thanks ,
Meriel

 

[Maia]

The last couple of years I have noticed this to be true for me too, but not before. I'm not sure why I didn't notice it or it didn't affect me before. In fact, cold damp weather nowadays is worse for me than hot sunny weather! The sun used to be what I noticed really triggered symptoms in the early years of this illness, but not so much anymore. Maybe the Plaquneil has really helped with that aspect of things.

 

[Moshbydefault]

oh yes the cold DEFINITELY DOES THAT TO ME

:cry2::cry2::cry2::cry2::cry2::cry2:
:cry2::cry2::cry2::cry2::cry2::cry2:

It's quite painful.

 

[granny weatherwax]

OH YES! as the churchill dog says!

Over the last few years it has been getting gradually worse, last year wasn't too bad though it wasn't too cold. I can usually tell what the weather is like before I get out of bed. (have my very own barometer :lol. I am waiting to see what the summer is like (didn't really have one this year) but before I was Diagnosed I didn't cope with the heat either! Don't know if any other Loupies have the same problem?

Claire

 

[w3nDy]

yeah omg sure does with me and hot weather ive noticed even stuiped air con i live in the uk as well and tescos is so cold with there air con
i always say i wise i was a bear that hybernates lol i have to be a panda bear tho cos i dont like fish and i coundnt eat raw meat lol
hugzzzz
w3ndy

 

[elle-co]

Hi Meriel,
Yes!!! Without a doubt my joints are worse in the cold. However I also find that travelling can make it worse to. Plane, train or car journeys all seem to make me very achy.
I hope you had a good trip.

Elle x

 

[miss_gladys]

Phew...thought I was the only one!

I was so glad to read this posting! For the past week I've been experiencing EXTREME muscle and joint pain (It's getting cold here in Michigan). I take Plaquenil and Mobic which usually takes care of things. I hurt so bad last night (after working all day with preschoolers) I resorted to taking a Vicodin left over from a biopsy. It worked great but I'm calling my rheumy today cuz I don't want to depend on painkillers like that all the time. I'm hoping he can give me something else.

Thanks for easing my mind that it wasn't just me!

Michelle

 

[Meriel]

Thanks for all your replies, it's good to know it's not all in my mind!
:rotfl:

 

[rachna]

don't worry its defo not in your mind! i suffer the same - the colder it is the more painful the aches are!

love always
rachna xxx

 

[jackie j]

YES,
It is the same for me. Mknees hurt tremdiously. I think all my joint ache so badly. It always cool here in the VI but lately it has been very cold.

 

[florie]

Same for me, the cold runs threw my bones and makes me ache. My knees also. I have been using a heating pad just to get me to relax my muscles.

Don't laugh, but i live in florida,:sunny: i would never survive back north! :shiver:


Warm hugs, Florie

 

[lin]

And if i get to cold, it effects the way i walk too, i seize up, feet dont go, werid feeling i have to have the heating on at home in the winter if its cold days, or just sieze


lin x

 

[onetay]

Meriel,

I know how you feel and to answer your question yes moisture of an kind makes mine worse. The cold is a big factor for me also as I live in the usa and to top it all off the midwest. This is only one reason I don't like winter. I have no relief for this yet other than a pain pill that helps sometimes and a fluid pill. Best of luck to you in the up coming cool weather.
Tammy

 

[sheila t]

My Joints and muscles hate the cold weather, you not alone with this one.

Keep warm

Sheila x